what 2 expect in future
noah is almost 11 months since i found out he has nystagmus i havent done alot of research. i dont know much about it.i …
Nystagmus is rapid involuntary rhythmic eye movement, with the eyes moving quickly in one direction (quick phase), and then slowly in the other (slow phase). The direction of nysta...

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Congenital Nystagmus
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Hi my niece whom is 10 month old has just been diagnosed with Congenital Nystagmus in both of her eyes, she was given glasses which do not seem to be helping, is there anything we can do to improve/help her with her being so young, will bright light effect her? will it be good for her? has any adults grown with the condition? if so how is life for you? any replies would be apreshiated xx
Posted on 05/01/08, 02:05 pm |
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I'm surprized it took so long to diagnosis this. I have been told there is a surgey to slow the eyes down. As the child gets older the movement w/therapy will really help to slow down the movement. I notice my son tilts his head a certain way at times to help focus. As far as the light not sure,my son also has occular albinism and the light is very bad for his eyes and skin but he wont keep a cap or sunglasses on anymore!Good luck and do some research if you can get the answeres here. It's not real common. Good luck to you.
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