Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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NF marathon idea
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www.ctf.org/nf-marathon/overview/
This site CTF has a section on doing a run or walk marathon to raise money for NF. I would love to be a part of this and would like to see if anyone else wants to join in. Maybe we could have the DS NF walk.run for NF...WORLD wide in one day. This (DS) gives us the opportunity to raise some money for a good cause. Something we all know too well and that we know needs more research. Also on the site is information on financial assistance as well as a free Prescription saver card. This is a chance to make a difference and I will swear to start work on making it happen here....Who's with me? Posted on 08/04/07, 01:08 am |
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I AM!! And I hate to walk. But if it will get more attention to this BS we all deal with--- Oh yeah! 
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not to do with walking but there is another web site that wants awareness too, i am bad at addresses but try typing reggie bibbs just ask in the search engine you use and it should come up, you might enjoy this site
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I'm doin it! See my daily journal for training details. Hey, if this old, fat, asthmatic, arthritic body can do it, anyone can! My goal is the marathon, all 26.2 miles of it.
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I think it's a great idea! I live in KY and would love to find groups, etc. to learn more about this condition...
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