Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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I'm new to the group and just wanted to say hi. I keep noticing more and more bumps,they never bothered me before but now they are on my face. My son also has nf, he has one lg tumor on his leg but thats all so far. He also has a form of autism so he has enough to deal with. I'm worried about how nf will effect him. I have scoliosis and had surgery at age 6. I keep waiting and watching him....and mean while more and more bumps keep appearing all over my body!!!
Posted on 08/19/08, 10:08 am |
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Hiya and welcome. I also notice that bumps appear there and there whenever they feel like it. I even go through a stage of sitting down checking all my skin looking for new ones!!! But hey life could be a whole lot worse couldn't it?? You will meet lovely people here and always get support. Hugs 
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Yes Welcome.
I also notice more bumps all the time. Always here to share expriences
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