What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Pregnancy and NF
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I might be pregnant again. I miscarried in oct 2007. We were told that i had a "heart"shaped uterus. the doctors never told us whether or not that was the cause of the m/c.
I just want some advice on what to do. I just want to have a healthy,stress free pregnancy.
Posted on 07/19/08, 09:07 am
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Reply #1 - 07/19/08  4:30pm
" When I had a miscarriage, my doc told me that 1 out of every 4 pregnancies end in miscarriage. So don't worry about that unless you know for sure. I don't know what your complications for Nf are, but if you have been seen by a special doc for that, I would continue. Other than that, eat well, lots of fruits and veges, take a daily vitamin, esp folic acid. If you, like me can't keep a "prenatal" vitamin down, you can take a children's chewable. Don't know why they don't make chewable prenatal, but I digress. I will keep you in my prayers. Oh, and don't worry, less stress is always better. I have brought 4 healthy children into the world, so if you have a question, you can e-mail me. Hey, having kids is one thing I do know how to do. lol. "
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Reply #2 - 07/20/08  8:31am
" I only have a learning disability because of the NF. No other complications from it. I am starting to take my prenatal vitamin. I just have to remember to take it with food. "
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Reply #3 - 07/20/08  9:44am
" Just relax and take very very good care of yourself and the little one growing inside you. Do not think of the past but of the future and all the fun that you are gonna have. Hugs being sent your way. "
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Reply #4 - 07/22/08  5:11am
" Fingers crossed for you. Cant give you any advice (No children as of yet)

But wanted to say good luck, let us know how you get on!! "
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Reply #5 - 07/23/08  10:47am
" I took the pregnancy test yesterday and it came up negative. My fiance and i are disappointed a little bit but at the sametime relieved. "
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Reply #6 - 07/23/08  2:28pm
" first so sorry about the mc. they can be devastating. it sounds like you may want to go back to your dr. have him explain more about your uterus to you so that you can understand. no since in worrying for nothing right! if you are trying to get pregnant its important that if this is a possible complication then you need to know that and what to expect. also ask how you could help your uterus! good luck! "
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