NF in the Houston area
If anyone lives in the Houston Texas area, ReggieBibbs.com has a blog and he is trying to get a support group back in …
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

|
i could really use some input!
|
Watch this |
| View More Posts Ignore |
i am starting a support group in my home town for families with genetic disorders. we live in a fairly rural area around a central hub. the closest support group is 200 miles +/-. the only other group in town is an autism support group but it is not the same. im working on a name for the group. does any one have any suggestions? also since i cant serve the group yet i need some input as to what you guys might like to see from a support group!
Posted on 07/09/08, 03:07 pm |
| 2 Replies | Add Your Reply |
| View More Posts Ignore | ||
|
|
||
| View More Posts Ignore |
This is just something that has come to mind, pretty weak really but hey I will give it a shot - The Genetic Health Club. Hugs
|
|
|
|
||

If anyone lives in the Houston Texas area, ReggieBibbs.com has a blog and he is trying to get a support group back in …
I am new on this board but not new to NF. I am a 60 year old female with NF. My daughter also has this disorder and …
Hi Everyone! I joined this group because my brother has NF1 and I would like to know more in order to be a better …