What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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i could really use some input!
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i am starting a support group in my home town for families with genetic disorders. we live in a fairly rural area around a central hub. the closest support group is 200 miles +/-. the only other group in town is an autism support group but it is not the same. im working on a name for the group. does any one have any suggestions? also since i cant serve the group yet i need some input as to what you guys might like to see from a support group!
Posted on 07/09/08, 03:07 pm
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Reminder: This is a support group for Neurofibromatosis. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 07/09/08  4:19pm
" Let me have a think on it, well actually sleep on it, ha ha, and I may have a brainwave during my sleep later. Hugs "
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Reply #2 - 07/09/08  4:24pm
" This is just something that has come to mind, pretty weak really but hey I will give it a shot - The Genetic Health Club. Hugs "
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