What is Neurofibromatosis

Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Mother Intutition
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Just wondering how many of you really believe in this with our little ones.

Kieran has to go back to hospital on Tuesday 15 July for x-rays and a general review of his condition/leg. I have this terrible feeling that something is badly wrong, I know the bone in his ankle is broken but they told us previously they did not want to operate on that until he was fully bearing weight on it and walking all the time!!! Yes I know that sounds stupid I cannot quite believe it myself. Anyway I just have this feeling that they are going to want to operate again before the year is out not quite sure how on earth I will handle that if they do drop that bombshell on me. I feel sick to the stomach everytime I think of the upcoming appointment

So, does anyone else have intutions which are spot on???

Hugs to everyone and I hope you are all keeping well.
Posted on 07/09/08, 08:07 am
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Reply #1 - 07/09/08  3:45pm
" there is nothing stronger than our bonds with out children. i have always known before the drs when there was something wrong with oren and i usually have to push them to do the correct testing. we spend day in and day out with our children so we see when there is something wrong even if it is slight. they spend on average 2 mins per patient. im sorry you feel down but you should be proud that you are in tune to your child its very important for his wellbeing and daily happiness. there are so many parents that dont want to deal with this so they stick their heads in the sand and let their children suffer. i understand that sick feeling i get it at every drs appt. it doesnt get easier. just remember as long as hes happy your doing a great job! "
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