Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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A Mass
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When I was in the hospital about a week ago the found a mass in my stomch. Its was tought to be a oulser. But now they said thats not what it is. They did a biopsy on what they could and it can back negtive but they want to go deeper and take some of the bigger mass....
I am so scared. With everything thats going on in my life right now I dont need to be thinking all these bad thoughts. Whtshould I do Posted on 07/03/08, 10:07 pm |
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My thoughts are with you. You need to find out what it is exactly. They have already said its negative, so try not to worry. Just take each day as it comes. Do you have some one you can talk too. 
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Hope all the news is good. So scarey to have a large mass, even if it is benign. Thoughts and prayers with you.
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I know how you feel, and the concerns you have.
My Dad is 84ish and was just rushed to the Hospial. He is now in ICU. He also as NF-1 as do I. 2000ml of blood bled out into a tumor on his lower back. his back is all swollen up. They gave 2 mg of morph. Did not help Gave and additional 2mg. Still in pain. This is his first complicaton from NF. Enuff of rambling. Warthog.
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don't worry I've have had tumors from my type 1 nf since 2 months old.
i have them ALL over my body most small except on my head. I just see it as a part of my life.
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