Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with n...
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I was just in the hospital for and infection I got on my stomach all around my fribromas I got a scratch or something tha t got infected and spread it didn't have anything to do withnf it self but having nf i guess you can be more proned to get infections especially if you have clusters of fribromas because it is a little harder to clean and keep dry.
Has anyone else had the same experience in some way. By the way I am doing great now. Posted on 05/11/08, 12:05 pm |
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tbear,
I have not had anything similar to what you describing but I am glad that you are doing great now. 
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I do have the "clusters" of fibromas and have the problem with them that they itch like crazy. Sometimes I guess they get caught on my clothes cause they bleed for no apparent reason. I will be especially careful from now on, thank you so much for sharing this info. I would not have thought of that. I am having a bunch removed from my chest and belly on Friday. I had to beg a doc and agree to pay 3,000 out of pocket to get him to do it. NF really sucks.
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