Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...
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NF Marathon
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My goal for 2008 is to run a marathon. The marathon is called The Flying Pig. It is in Cincinnati and the purpse is to raise money for the Children's Tumor Foundation which does research and education for NF. I have NF as do 2 of my 4 children. So even though I am only up to running 8 miles at a time, last year at this time I couldn't run up my stairs. The main goal of this marathon is to raise money. So I am giving a link
http://www.active.com/donate/nfrac... where you can donate for this. Anything is appreciated and if you could get the word out. I don't really have a fundraising goal, but anything above $0 I guess. My goal for the marathon is to finish in a verticle position. Anyway. Just think about it. I need all the encouragement I can get. God bless you all, Marah Posted on 12/26/07, 07:12 pm |
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Marah,
You have my respect and admiration. I don't run with the NF marathon team but I am a volunteer with the team. Does the Flying Pig have a half marathon? Many of the runners who come to Phoenix choose that race. Thanks for running for a cure. 
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Yes, Flying Pig does indeed have a half marathon.
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www.ctf.org/nf-marathon/overview/ This site CTF has a section on doing a run or walk marathon to raise money for NF. …
I was nosing around CTF because I wanted to take a peek at the athlete program that Marah mentioned, with regards to …
Okay, so at the marathon yesterday, I met a woman who saw my NF Team shirt and wanted to thank me. I asked if she was …
