Dr. Weinberg- An amazing NF plastic surgeon!
Dr. Weinberg is a compassionate doctor who has made NF his cause. He is the first doctor who I didn't have to explain …
Neurofibromatosis is an autosomal dominant genetic disorder. Neurofibromatosis type I (NF-1), also known as von Recklinghausen syndrome, comprises, along with neurofibromatosis typ...

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Tales from the lieing stethascope
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last week the doctors were suppose talk with me about my surgery nope. she's talking with the doctor about scheduling she'll call you next week sometime.
well another week gone and 2 messages left and yep no call i feel their scared to operate on me. at first they kept asking me if i was sure i wanted surgery. like come on lady i've only been to 6 different appointments till i got here...!!! is it just me ? should i leave and go to another hospital? does this happen to any other of you? i just gets real frustrated but i'm so close i just feel pushed aside cause it's the cancer department and they don't consider me as important. first she said it would be end of july when i would go in and now its end of august. Posted on 08/23/08, 03:08 am |
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my advice to you is.Keep at them bombard them with phone calls and letters .Its bad enough you having to deal with this condition without them being twats.here in england they can also be slow but they hate it if you keep on at them and most times they give in.look on the net and see what rights you have and the best way to go about this .best of luck mate ponyrider
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I know how you feel. I had a very painful one on my shoulder that I had to beg to have removed. And he still didn't get it. He tried to tell me the tumor wasn't painful. Made me want to grab him by the balls, squeeze really hard and then say, "Oh, I'm sorry, I didnt' think that would hurt." Keep after them. We have a right to be treated! I almost feel like I have leprosy sometimes. Good luck.
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Dr. Weinberg is a compassionate doctor who has made NF his cause. He is the first doctor who I didn't have to explain …
so last Wednesday I finally had reconstructive surgery on my face to repair some damage to the bone structure and soft …
I have NF1, and scoliosis,& a meningocele on my spine. Just wondering if others also got scoliosis along with …