The main characteristic of narcolepsy is overwhelming excessive daytime sleepiness (EDS), even after adequate nighttime sleep. A person with narcolepsy is likely to become drowsy o...
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I've been a member of this forum for months, but this is my first post. I have really appreciated reading all the questions and responses. Amazingly, when I was feeling some symptom of N or had questions about meds, I logged on and answers/feedback was provided through the discussions.
I believe I've had N for years, but only diagnosed within the past five years. I am on provigil and adderall. I take 600 mgs of provigil a day and just don't have the energy to make it all day. When my dr. increased the dosage to 800 mgs, the insurance company denied coverage for the extra because they said it was impossible anyone could need that much. grrr... The neuro I WAS seeing told me to buy speed off the Internet. Anyway, I'll spare you the war stories. I am very grateful for this site and to all of you who share your stories. In addition to often feeling like I'm buried 5 feet deep in jello and trying to function like this, I feel so isolated and frustrated because others around me don't understand. I know they care, etc., but there is such a tendency for others to minimize what I am feeling. Again, thanks for being out there. It helps to know others get it! Posted on 10/03/08, 10:10 pm |
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Congratulations on your first post riverfran, hope to see a bit more of you on the boards.
It is great to know that others see the discussions as a source of help and support, even if they don't post themselves, i'm sure there's hundreds that do just that. Would be lovely to see more posting though, it helps everyone to know that they're not alone and isolated. This is the best way of communicating with people who absolutely know what you're going through, with all the will in the world there's no way we can really get friends/family/colleagues, even sleep docs, to truly understand what we go through. I wonder if there are any sleep docs that read this site and use our experiences to help them in their work to understand their patients. 
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Welcome!!!!! I was glad when I was finally diagnosed, yet now I hate it! I'm a slave to my medicine, and fighting with the insurance companies isn't fair. Who are they to say that what the doctor prescribes isn't right!! Uh duh!! They are doctors!! In any case, keep searching for the right med combo and keep your head up (lol) ; )
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I have read that Provigil wasn't effective for some. I am on 10MG of adderall 3times a day; my doc said we can …
Was just wondering if anyone out there is on this combo treatment and if so how do they combine the two. A little …
Does anyone else LONG to GET OFF the provigil and go entirely to something else? I do!! I want to get all adderall or …
