Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
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Lost in DX
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I am new to the forums and wanted to say hi. I was recently dx in May 2008 and am feeling a little lost in the dx and determinining what dx I should start. I was glad that there was a name for what was going on with me, and the dr's could stop looking at me as if it was all in my head, but not really the dx I was looking for. The nuero has given copaxone and betaseron and two options but since it is a research clinic there are some trails that I could partake in. Is anyone in the FTY720 study? I have researched the betaseron and copaxone info but am still looking at the FTY720. Any help would be appreciated.
Sin Posted on 07/06/08, 08:07 am |
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Oh, I wanted to add that I did meet the woman in charge of the FTY720 trial at our ms clinic. One thing that was made VERY clear to me is that I could drop out of the trial at any time. As long as I would agree to a check up with them every 3 months or so, I would still qualify to get the real drug at the end of the study and "continue" the study with the real med for a long term study..
Call your local participating clinic and meet with someone, talk to people here. good luck. 
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Angel, first let me tell you, your life will go on and likely florish, so don't let a little thing like MS get in your way!!! I was dx in Dec. 1993, went on betaseron in Aug. 94 after I won the lottery (get this, you used to have to go on a WAITING list, and beta was the ONLY treatment available)!
Did betaseron for 8+ years and suffered the side effect of necropic skin at injection sites. Often, I'd have open sores that would not heal for months... Stopped betaseron in Jan. 2003, and my neuro wants me on Copaxone... Get this, because I'm on Medicare, I would have to get Medicare Part D, and would still have a co-pay of $400/month... I'm back in lottery for financial aide, I guess, and would chose Copaxone over all interferons myself. My neuro agrees... Good luck with your decision, and please feel free to send me a message if you have other questions! xoxoxo Cj (Cindyjo)
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