Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
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Hello everyone, I just wanted to say thank you for having and participating in this site. There is not a support group where I live, so I was grateful to find all of you on the web to try to understand a little bit more what is happening to me. I've been trying to get a diagnosis for the myriad of health issues that have been plaguing me for the past five months, and receiving the MS diagnoses was kind of a relief, because now at least it had a name and I could, hopefully, do something about it.
I guess I'm wondering from all of you and your experiences if I am being to laxidasical about getting the MS diagnosis. I was kind of under the impression that I start on treatment, deal with occasional flareups, and life goes on as normally as you can. Am I kind of hiding my head in the ground so to speak? Any insight would be helpful just to know what to expect as much as possible. Thank you again for any advice, support, etc. and if I can do anything for anybody, please just hollar out. Tasha Posted on 07/04/08, 08:07 am |
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it took me so long to find out what was wrong with me that i was relieved also.
educate yourself on m.s., start treatment & and welcome to this group! we're here for you! 
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welcome to the group. My name is Pat, I was diagnosed over 20 years ago, and ive done really well, my nuro says. for 20 years I was fine, the m/s just started flaring up again 6 months ago.
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welcome to the group!i know what you mean about the diagnosis, it was a relief in a sense. its such a strange disease....it will dictate over time what your treatments need to be. the more you read about it and learn from others, the better prepared you'll be when you need answers or have to decide on treatments. as you move forward...pay attention to your symptoms, write them down. it will help you and your doctor down the line...
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Tasha,
As a person who has been dealing with RRMS for more than 20yrs & can say this.... There a many ways to manage MS & keep it in remission (8yrs & counting). You are probably lucky you got DX'd so quickly. Took over 5yrs for me. A good site online is ldn.org. Diet & nutrients are important & I do many other things (never steroids). Lorna this is a good site
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THIS IS A GREAT SITE.IT WAS THE ONLY PLACE I HAD TO TURN TO.IT WAS A MECICATION IN IT SELF DURING ROUGH TIMES.I'M UNDER THE IMPRESSION THATS HOW THE M.S. COURSE STARTS OUT ALSO.
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you have come to the right place here. You are amoung good people. HUGZ!!!
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I understand your feeling: when I was finally diagnosed after 19 years of not knowing what was wrong with me, I was relieved and more than a little ticked off at this disease that had been hiding from me for so long.
Getting this one tossed on top of other diagnoses can seem like another cross to bear, but be assured that it's nt the end of the world, and you can function in the real world: case in point, in my office, there are 5-6 folks with MS, and only two of us have any outward signs (mine is the walker that I use about 50% ot the time, now). You need to know where you are in your on-going recovery to help you get back in the saddle, so to speak, in all three areas: emotionaly, mentally, and physically. Give me a shout if you have any questions or just need to vent: been there, done that so many times I can't count them all LOL! ...CPNAdams
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Its good to have a name to the symptoms. I spent years (more than 10) with symptoms, refused to return to the neuros (yes, multiple), was considered a drug seeker for pain drugs. Since my diagnosis I get understanding and willingness to help me. My biggest 'problem' is memory, balance, fatigue and chronic pain'.
That's the only good thing I found out since being diagnosed.
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Welcome!
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I was "fortunate" enough to know on my first doctor visit why I was feeling like crap. I was extremely active before my dx, and I intend to be just as active now that I know I have MS.
I chose this board because there is a wide range of people, with a wide range of mobility, treatments, ages, lifestyles etc. I was surprised how many people I've met who are in their 30's living with MS! I've really learned a lot here, and met some really great people. Welcome!
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