Multiple Sclerosis (MS) Support Group

Nobody really knows what will happen with the MS monster. What type of disability plan do you have, because that could be important in the future?

Think positive & hope your symptoms settle down. Have you heard about low dose naltrexone? If not, go to ldn.org

Have you seen your neuro? Maybe they could do a Prednisone tapering dose for you that will help. The hip pain & tingling may last awhile & you may have to learn to adjust to that. But the vision thing can be helped with steriods. Good luck.

Thanks for the feedback I've done the predisone and that helped with the double vision but I'm really sensitive to light now and that hasn't gone away. I see my neuro again tomorrow hopefully he'll give me some thing new that might help. My disability plan is full pay for 16 weeks after that it's 60% with 4 kids and the economy their is no way to survive off of that. I'm hoping to be able to go back to work but, I've always been a person to have a back up plan and now I just sit and wonder what if.. what if my vision doesn't get better, what if I can't go back to work, this disease attacked me and now I know the signs were always their but now I have no idea what my next step will be.

Hi afallen, if you have to work and no options, then you should check with your HR and then your IT department to see what they can do for you for adaptive equipment, screens with less glare and such? You might be able to contact an Occupational Therapist to see if they can assist you, with ideas to adapt your workspace, you know, like adjusting lighting and distance, perhaps wearing some sort of eyegear to get you through. Good luck!

Ditto to L'ilMarge's advice. I will add that the NMSS, the MSAA, and the MSF do over assistance in purchasing technology for your own use, in case you need an adaptive screen feature at home. As far as work, your employer is legally required to provide this, with a physician's Rx. Best of luck to you! Leanna

you got some good advice from lilmargie and leannab on going back to work. as far as your questions on how do you answer if you're getting better, well to friends and family i would recomend you saying something like," untill there is a cure this will never go away" then get them a copy of m.s. for dummies or refer them to the m.s. society websight so they can start to get educated. your questions on should you expect to get better soon/and go back to work, well m.s, is different for everyone. there are treatments now that have had great sucess for people with m.s. i myself am soooo much better since being on copaxone. i've had steroid treatments before that have made a huge difference in my symptoms. i would start there with asking your neuro if steroids would be appropriate in your case. good luck to you! you can message me anytime.

Everybody is different. I was on the phone with a large insurance company and had to give that up, I just couldn't remember. Everybody is different and affected different with MS. I've had 3 flares (going through a 4th I think at the moment) in 13 months since diagnosis. Not everyone is like that, I didn't see it coming either. All I can tell you is to take care of yourself first, you'll recover faster typically.

I agree with everyone's advice. I am going through the same thing with different symptoms (mine is the horrible fatigue). My company said I would have to do std first. I am trying meds first to see how I do. I travel alot with my job. If you have the benefits, use them if you need it. That is what your HR people are for. And talk to the JAN (Job Acomodation Network). They can help with the accomodations stuff for work. I know it is very frustrating. The not knowing what the future holds is the worst. I too, worry about the lost salary with disability, but have to be thankful I at least have that option when I need it. Good luck. Maybe see an opthamologist too for your vision.

You all are so wonderful! I'am so greatful for all the advice and support it has opened so many doors already! I started the steroids again and will see the opthamologist next month until then I guess I still have to learn to take things day by day and now I know I can come here for support. Thanks again everyone!

hi afallenstar....i have epilepsy as well as ms..to help with the glare on the pc..two things can be done...if you have a crt screen at work on your pc..see if it can be switched to a lcd...also you can buy antiglare screens at places like best buy that fit over the pc..i know in canada they run about 40 dollars...so if your in the states...grin..most likely around 10...lol

alot of epileptics use them as they are either light sensitive or photo sensitive

hugs
heather