Multiple sclerosis (MS) is a chronic disease which affects the brain and spinal cord. MS can cause a variety of symptoms, including changes in sensation, visual problems, muscle we...
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I'm just wasting your time.
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I have two questions, ladies and gents. One is for all MS'ers. One is for copaxone users. Pick and choose.
ALL PEOPLE'S!: So, as i've stated before i had my first initial attack back in January which is what led to my diagnosis. I was given 5 days of IV solu-medrol and sent home. Still had the symptoms for almost a week after that (blurred vision, numbness, buzzing down spine, tingling) But it eventually all went away. I was clear for a week then it all hit again. Not as bad the second time around. It was pretty much just my eyes the second time. I was put on a 2 week regime of oral prednisone. I've felt fine after that. Sometimes i even forget i have this until i get a weird sensation and i can't help but wonder if it's the MS. SO HERE'S MY POINT! Since i'm still very new to this i was just wondering even though i'm obviously in remission is it normal to have the occasional numb foot or hand? I ask because i've noticed my feet, especially my right one, and hands going numb for short periods of time for the last 2 or 3 days. And today at work all my extremities went numb, i got very hot and dizzy and i had to go into the deli walk-in fridge just to cool down. So yeah, like i was saying! Is this something i'm going to go through for the rest of my life? Or should i take this as a sign of an oncoming attack? The only thing i've been doing differently lately is walking everyday for exercise. But that should benefit me, no? Oh yeah, and it is getting much much warmer out. Feels like summer here. **COPAXONE USERS!: It seems that my last few injection sites have been severely itchy and slightly red. Even days after i've taken the shot. Also, when i first started using it there was a chance i'd get a hard lump and sometimes i did, but now i ALWAYS get a hard itchy red lump. This is probably common. What i really want to focus on is the itchiness. I mean, last night my right thigh itched so bad that i barely got any sleep and i scratched hard enough that i left a bruise. I finally got fed up with it and around three in the morning i slapped some cortizone on the damn thing. I know the injection site can and usually gets itchy after the shot but for it to itch and have a red rash looking thingy (i sound so educated) around it 2,3, even 4 days after the fact? I may be dumb but i'm not stupid. This can't be normal. I AM GOING TO CALL SHARED SOLUTIONS TOMORROW BUT I WANTED YOUR OPINIONS FIRST BECAUSE YOU'RE THE ONE'S WHO ACTUALLY USE IT. Posted on 04/18/08, 04:04 pm |
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hmm...the numb foot thing can be nerve pain...
see it goes into remission because the lesions sort of heal over...but occasionally it can still "short circuit" and you can get the occasional wacky feeling. Heat stimulates the speed of the nerve transmissions...that's why people with MS don't usually do so well with the overheating... Are you on any nerve pain meds like neurontin or lyrica? and as for copaxone...yes mine does get itchy sometimes...I got this tip from another copax user on here. use heat first...then inject...then put a dab of benadryl cream and a cold pack...it's been working wonders for me so far 
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The numbness is normal, but it's still worth it to give your neuro a call. The dizziness is fairly common for me also. Even after recovering from an attack you can still be left with symptoms that pop up from time to time, especially when you get overheated, or tired.
As far as the Copaxone goes, is it possible that you accidentally changed the depth on your autoject (if you use an autoject)? When I used to use it, I had changed it without knowing and I had a similar reaction. I wasn't injecting deep enough. Now I self inject whenever possible and I have virtually no site reactions. Hope this helped. xoxox Jen
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#1)
My MS neurologist told me at my apt. yesterday not to worry about symptoms that come and go like your numb foot. (mine is my numb face). I got the impression that they happen and that he would not do anything about it but of course I could call anytime I wanted. However, he said that if it was a symptom that interfered with a FUNCTION (like walking, sleeping, eating,talking peeing) then I needed to call him . #2) It's hard for me to say because I only have mild itching and bumps that disappear after a week at longest. But its my impression that there is a broad range of normal. I hope shared solutions will give you more info and advice.
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Some numbness on and off can happen. If you're not sure call your neuro. Be careful not to get overheated while exercising. Things to avoid are heat,stress and getting overtired.
Copaxone...I've been on it for 6yrs, I inject manually because for me there's less bruising,bumps and more control. Try using any over the counter anti-itch cream on the site. I agree with your first reply...heat, inject, and beandryl then cold pack. Take Care
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The itching and lumps, even bruises are normal, although completely maddening. When I started, I looked like I'd been in hand-to-hand combat with bruises, lumps, and welts. And then around the 2nd month, I got the WORST ITCHIES ever imaginable on every injection site, that lasted weeks. I actually thought I was going to die, it was horrible, and no amount of cream helped because the itch was UNDER the skin where cream couldn't reach. It's normal and will get better! If it's actually a rash with little red bumps, you need to check that to see if it's like an allergic reaction, but the welts will look like raised orange peel skin...normal and freaky. It's all a part of getting used to the medicine. I've been on Copaxone for a little over a year now, and all the unsettling site reactions have been minimized for most of that time. Yeah, I get big red lumps that itch, but only a couple days. But it will get better, stay strong!
As far as the remission question, I don't know if it is at all common for people to have complete symptom-free remissions. It seems something always lingers, some pain, numbness, memory loss. You can call them a full blown attack if they last over 3 days. Most of my lingering symptoms just come and go throughout the day, and I am considered "subclinical" or "benign" in my MS progression (not on any meds other than Copaxone, I've been incredibly lucky). It all depends on how long your body has been in the MS battle. The longer the fight, the more damage and the more possibility for symptoms. Think of those little annoying symptoms as abnormally normal for people with MS. We all have to deal with it each day to some degree. Take care! XOXOXO
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one other thing is are you eating and getting fluids? some imbalances can also do what you are talking about .
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Boo go to LDNusers.org
I am injecting copaxone and as much as I like needles I think it's mostly a waste of time. i get the hard lumps less all the time, you can do LDN with copax if you think it is good That is what I did. I got plenty scared after 22 years with this thing after surgery. But i did not know about LDN or SF1019. A friend of mine has been going through the hell for 17 years and got on the ldn and can see the progress, we both know the smoking is a factor, diet also plays a big part. Don't hate me cause I am beautiful and tell the truth.
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Thehouse, I only have two sensations in my body: very numb and really, really numb.
The numbness never goes away for me and I'm feeling the stiffness creeping back into my limbs. It's like I'm slowly becoming a mummy again. Good luck to you in dealing with your MS. Peace always
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Lump, I'll be the judge of your beauty. Email me a photo and I'll rate it for you. Tip: The more risque the picture is, the more points you get, if you know what I mean (wink).
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