Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...
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peripheral neuropathy
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Has anyone heard of peripheral neuropathy related to MM? Not caused by treatment though. I just got diagnosed with this and wonder if it is related any way to the myeloma. I plan on asking next week when I see the Oncologist, just thought I would see what you all thought.
Posted on 08/02/07, 10:08 am |
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Hi,
I was just reading about it. It sounds like it is because of hyperviscosity of the proteins in the blood. It gets thicker and causes symptoms including neuropathy. Here's a link. I have experienced it but because of treatment (thalidomide). I still can't feel some of my toes. I'm sure your oncologist can help more. Cheryl http://clevelandclinicmeded.com/di... 
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I had my oncologist appt. on Friday. My levels stayed steady. Great news!! He was though very concerned about my neuropathy. Wants me to see a neurologist.
Also my bilirubin level doubled, asked if I was a heavy drinker. I laughed as I have not hardly even drank lately. I did back in the day. But after having kids stopped. Anyhow, now more DR. appt's. ARGH.
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Hi I have peripheral neuropathy I developed I aslo have MM and Lupus and Sjogren this could be th caused and some meds well take care
mill
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My thoughts and prayers are with you for sure. My neuropathy was caused by 9 months of thalamide. My feet feel cold but actually there are warm. I hope you get some answers when you see your doctor. Keep us posted. Poppy
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I have peripheral neuropathy that is helped with the med Lyrica....bad news is my insurance doesn't pay for it and it's $200/mo. Only approved for neuropathy in diabetics. WE need to get some pushes for studies to prove it helps for MM neuropathy. Good luck.
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I was diagnosed with mm in 10/06 & treated with thal.Developed "mild" neuropathy while on thal. (the pain doesn't seem "mild").Had stem cell trans.08/07.Started on Lyrica-helped some but had big weight gain & wanted to sleep too much. Stopped taking Lyrica.Trying to learn to live with the pain. Hope eventually it will get better. How are you coping now?
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My neuropathy is progressing. My oncologist suggested possibly looking into disability. I had a fit, I am not ready for that. I keep falling, they have upped my lyrica to 300 mg a day. Helps some, but 25 added pounds so I know what you are saying. I am going to see if they will put me on Topamax. I had taken it years ago for Sciatica nerve pain and have seen where they are now using it for neuropathy. I lost 40 pounds when I was on it. I wish you the best.
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