Multiple Myeloma Support Group

Wife just got MM. Doctor put her on Revlimid/Velcade/Dex as first line treatment. She is in her 1st. cycle.
Also getting Radiation for 8 days. Wife is 46.

Hi Limeusa
I am new here and see that your wife is pretty young like I am. I was just diagnosed about 5 weeks ago and would love to have someone my age (or any age really) to talk to and share with. Thanks

My first treatment was VAD chemo which didn't work. Then I was put on thalidomide/dex. It worked! I was then able to have my stem cell transplant within 5 months. The only side effect I had was numbness in my toes which I still have after almost 4 years. The side effects of the dex were worse.

well I will start the medication next month I to somes experience with the med
mill

Thailomide put my dad into remission...twice. It did absolute wonders and actually wasn't too bad or atleast tolerated for side effects.

Id just like to say however, that atleast in MI not many doctors follow or are aware of how bad it can be to go past the suggested dosage. My dad lost all feeling/numbness/tingling in this feet and hands. Make sure your doctor is aware.

Hi, im 36 and dx last may(2007), was put on thalidomide in myeloma IX trial, seemed to do the job, had stem cell transplant and now in remission. Offered thalidomide as maint' drug but decided not to take yet, wanted mt body to rest after high dose chemo.

My husband tolerated Thalidomide well but developed a blood clot / pulmonary embolism that took too long to discover. We were not aware of that danger.

i have been on thelidomide for six months and have three months to go.it is working well with little to no side effects.has brought my count down to .03 so dr is leaving me on it to get it down to 0.

I was on Thalidimide for 4 months leading up to my first stem cell transplant. I had numbness in my feet, hands, mouth area. All went away except the bottom of my feet when I stopped taking it. I am on Revlimid now.