Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow ...
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How long does my mum have?
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My mum was diagnosed with Multiple Myeloma 9 years ago. She has participated in several clinical trials which have worked very well. Now however there are no more drugs available for her that she hasn't already tried. She doesn't want any more chemo or steroids.
Her body has become drug resilient, the four weekly blood transfusions are no longer working, her para protein levels are higher now than when she was doanosed. She is in a lot of pain, several areas of bone destruction and very tired. I think sadly this is the begining of the end now. Do these sound like symptoms of someone who hasn't got long to live? And how do I deal with this? I am 32 and my mum is 63. Thank you. Posted on 07/08/08, 07:07 am |
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I don't have the answer to your question, perhaps Dr Orange could give you a better indication? Are you able to send her a message? Really sorry you're going through this.
Muriel xox 
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I know you are struggling for answers, but there really are none. It sounds is if you mom is a true fighter, and there is no way of knowing what is "right around the corner" in the MM world. I can understand your mom being tired however I feel the best thing you can do is support her with love, humor and is there a creative art she loves or is interested in? Taking her mind off the pain along with pain meds may help her continue the positive attitude she has had all these many years. I am just 3 weeks out from a BMT and 9 years is a dream for me to aspire to, so I thank you for writing that. Read my journey at www.janscancerjourney.blogspot.com. Your mom is in my prayers.
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I dont have the answers and not sure what to say, i will send my love and strength to you both. X
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