What is Mucopolysaccharidosis
The mucopolysaccharidoses are a group of inherited metabolic diseases caused by the absence or malfunctioning of lysosomal enzymes needed to break down molecule...
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Hi..I am new here. Our 10 year old son Lucas...
StaceyM Dec 07, 2007
Journal Entry for December 7, 2007
Friday, December 7, 2007
Hi..I am new here. Our 10 year old son Lucas has MPSIIIB, Sanfilippo Syndrome.
I look forward to meeting all of you and learning more about your families.
Here is his website. http://www.caringbridge.org/visit/hopeforlucas -
HiSO this morning I went downstairs, to get ...
betsy35 Dec 06, 2007
Journal Entry for December 6, 2007
Thursday, December 6, 2007
Hi
SO this morning I went downstairs, to get a much needed cofee and what do I see. Oour CHristams tree has fell over, talk about a mess, I spend 2 hours cleaning up broken balls and ornaments, Iam so getting a fake tree next year, -
Hi This is my first journal entry online, so ...
betsy35 Dec 03, 2007
Journal Entry for December 3, 2007
Monday, December 3, 2007
Hi
This is my first journal entry online, so here goes.
Its brutal outside today, snowing raining and windy, only in the 20;s. Sometimes I hate New ENglands Winter. Dh is being such a pain. We have both had strep throat, but guess who gets up with the girls on the weekend. ME ME ME, He sleeps till 10:30, then he says "not my fault, I was asleep. DUH,,, He goes nobody mad... -
Today is May 15,2007 Christian seems to be feeli...
hhenry85 May 15, 2007
Journal Entry for May 15, 2007
Tuesday, May 15, 2007
Today is May 15,2007
Christian seems to be feeling great today but it is still a little to early to tell but anyway I am waiting on Saturday to get here so we can go ahead and get him on the list for his bone marrow transplant so i will write in my journal then -
Today is May 14 My son was diagnosed with MPS t...
hhenry85 May 14, 2007
Journal Entry for May 14, 2007
Monday, May 14, 2007
Today is May 14
My son was diagnosed with MPS type1 like two weeks ago he is a year old and to look at him you would not ever think he was sick we didnt but then on 4/24 we went into scotish rite hospital for an abses he had on his neck the doctors started doing all types of test they did x-rays a MRI two blood tests a urine test a heart echo I took him Thursday for an abdominal ultra sound they...
Journal Entry for December 7, 2007
Friday, December 7, 2007
Hi..I am new here. Our 10 year old son Lucas has MPSIIIB, Sanfilippo Syndrome.
I look forward to meeting all of you and learning more about your families.
Here is his website. http://www.caringbridge.org/visit/hopeforlucas -
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