What is Mitochondrial Diseases
Mitochondrial diseases are a group of disorders relating to the mitochondria, the organelles that are the "powerhouses" of the eukaryotic cells that comprise higher-order lifeforms...
Join Now
|
I have so many fears about mito
|
Watch this |
| View More Posts Ignore |
I have so much that I fear with this disease. Losing my vision is probably one of the biggest.
Something that I am having a real hard time dealing with. I also fear having the phone ring with the news that someone else I know has lost the battle with this disease. I fear for the future and what that holds for my children. Does anyone else have that pit in your stomach, caused by fear. Posted on 01/18/08, 12:01 pm |
| 4 Replies | Add Your Reply |
| View More Posts Ignore |
I am still in process of trying to get a diagnosis but fit many of symptoms.Worst is losing my sight, it is just fading, also I now have inner ear hearing loss, could you tell me what sight/hearing loss is like with mito disease?
manythanks 
|
|
|
|
||
| View More Posts Ignore |
I have been diagnosed with retinitus pigmentosa. Many of my family members have this as well. I have trouble with night vision right now. but this is a progressive thing. My aunt's lost their outer vision more and more till completely blind. My son age 14 and I also have minor hearing loss high tones,but have never had anyone say much about that other than they would keep rechecking it to see if it progresses.
|
|
|
|
||
| View More Posts Ignore |
I just joined the blind/ visual impairment group today.
The thought of completely losing my sight, really scares me. I don't know how I'm going to mamage everything when that happens.
|
|
|
|
||
| View More Posts Ignore |
I'm sorry to hear about your sight issues. I have had some high frequency hearing loss, but nothing with my sight. It is really scary what mito can do to you, but all you can do is keep taking everything cq10 etc that the drs have you on, avoid known triggers, and try to keep a positive and hopeful mindset (very difficult, but important). There seems to be a lot of focus in mito area in terms of research, at least more than in the past. Better treatment are bound to be around the corner. Hang in there.
|
|
|
|
||
