Migraine Headaches Support Group

I think all of us with migraines of any sort go through the HOPELESS feeling at some point or the other, I know I have been there, I was having 3 or more really severe migraines a week at one point and everything seemed hopeless to me. But I have been very blessed, I only have the severe attacks on an average of every 5 to 8 weeks now. Just don't give up on this. there are so many different things out there now, my problem has been, something will work great for a while then it will quit pushing me right back to where I started, no wonder we feel hopeless sometimes!! Migraines are terrible and people who don't have them sure don't seem to reall understand us!! Take care and if you ever need to talk, I am here for you!! God Bless You!!!!

I absolutely know how you feel. I think we all do. It's a roller coaster of a ride.

What are you & your Dr's doing for you right now to try & help you?

I did feel the same way sometimes. There is no cure for feeling hopeless as well. Try to distract yourself. In days when you do not have migraine go out and do something you like! Being outside, reading a book, swimming, biking. But at the same time keep trying to find somehting that will help your headaches. It will take time (it sounds cliche...) New medications, new procedure that might help. People will not understand and in fact people tend to understand fatal deaseases or completely debilitating. Migraines seem to be just another headache for them.

Firstly I promise to be civilized! Nice in Australia refers to food!
I can only give you one suggestion - and I know this won't apply to everyone: I've been living with these heads since my son was born - 1979! - and by a miracle of good luck, I found a family Dr. who decided to test me for allergies (after sending me top 4 specialists - producing nothing). I couldn't believe how many things I was sensitive to (so then my 2 kids were tested: daughter also has many food intolerances, son was already an asthmatic. All I can do is suggest that you try to get tested for food intolerances, and frank allergies (which means an expensive specialist). Finding a Dr. who tests for food intolerances is hard to do, but they are around. Stress is also a big factor, & I've been under a great deal - younger d. is being tested for MS right now!~ it's all really dreadful. Make sure your eyesight is tested, and wear specs or lenses if needed - that is also a trigger for some people: I've jst got new "intermediates" for computer use only. They help greatly. I have taken a beta-blocker for 1 year, and it was great; but I needed regular checkups at the Montreal Neurological Institute - a long way to go from Australia!!!! So had to give them up. I hope this is of some use to you. Best wishes janeD.

I'sometimes have migraines for 2-3 days....and YEAH you do totally feel helpless. I feel that it's mainly due to dr's lack of compassion &/or their reluctance to perscribe the meds that could actually help someone. IT'S terrible...and a miserable things to deal with. It's one of the worse pains you can experience...so when people say they have a "headache"....I want to ROLL my eyes!! (they do NOT know "headache") It's a truely HOPELESS feeling for those of us unfortunate to have experienced these. TAKE CARE OF YOU.....& know you are NOT alone. HUGS, M-

A sense of hopelessness is normal in our circumstances, but there IS hope and we must keep trying to find the solution to our suffering. If what we are doing isn't working, we must tell our Dr. and try something else. Right now I am on a newish medication called Ralivia and also Lyrica. The combination seems to be working not too badly. The headaches still come, but are not as severe. This is more like chronic pain management rather that taking Oxycodone for acute pain. Anyone else trying Ralivia?

Yes, I've felt hopeless a lot and I've posted about it here. A few weeks ago I got the "We've tried everything, I can't help you" from a neurologist for the second time. My family doctor told me I should try marijuana for my headaches and it actually is helping a lot. I don't like being under the influence but it's better than a headache.

You're not alone! It would be weird not to feel hopeless. I feel like I'm going insane sometimes. I've had a chronic migraine since December 15, 2007. Although I have a great neurologist, I'm currently getting nowhere. Hang in there, and know that although no one in your immediate social circle may understand what you're going through, there ARE those of us who do understand!

EMILY, MY DOCTOR WHO IS A HEADACHE SPECIALIST, WAS UPFRONT WITH ME. HE SAID THERE IS NO CURE FOR MIGRAINES. THEN AGAIN, MY PAIN IS NOT A TYPICAL MIGRAINE BECAUSE THEY STARTED AFTER A HEAD INJURY/ TBI AT WORK. THEY ARE TREATING IT AS IF IT WERE ONE. HE ALSO SAID THAT ALL THEY CAN DO IS HELP TAKE THE EDGE OFF. THIS THEY ARE DOING. I HAVE HAD PAIN IN MY HEAD SINCE MARCH 2, 2006. IF I GET 3 OR 4 HOURS OF LOW PAIN A DAY, THAT IS GOOD.

Don't give up. I was like that for years. I felt so hopelessness and depression set in from this long term pain. (I was having 5-7 a week)
In March a doctor prescribed LYRICA. It has been a miracle drug. I got my life back. The neadaches still come but they are not as frequent or as bad. I now about 5-7 a month.

I was like you and went to many doctors, until this last one. That is when I found a medicaiton that prevents the miagraines. I had trtied so many drugs but none had helped. I lived off of Imetrix.

SO DON'T GIVE UP...Ask you doctor about Lyrica. THERE IS HOPE! Vicki