What is Meningitis

Meningitis is inflammation of the membranes (meninges) covering the brain and the spinal cord. Although the most common causes are infection (bacterial, viral, ...

Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
Discussion:
Recurrent Viral Meningitis
Watch this 
View More Posts
Hi all -

I have Mollaret Syndrome, which is a recurrent viral meningities. I've had 3 episodes in 6 years. There's not a lot of information out there about this subject. Does anyone know more about it? Know of a specialist who deals specifically with this?

Every time it happens, I wind up in the hospital for at least a week. It is EXTREMELY painful and debilitating. The worst part is that it could happen again at any time. It could be weeks... months... years... or (hopefully) never. I want to do everything in my power to make sure it never happens again, but it seems like my options are limited.

I tried prophalactic Valtrex, but that started affecting my liver so I had to discontinue daily doses. I'm now on an IV of acyclovir at home and will be disconnected this Friday, after more than 2 weeks of treatment.

Any one else out there share this experience? Know of new treatments? Anything?
Posted on 09/11/07, 12:09 pm
RATE THIS POST:
Inspirational
Moving
Helpful
Creative
2 Replies Add Your Reply
Reminder: This is a support group for Meningitis. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts
Reply #1 - 01/05/08  6:55pm
" I am so sorry to hear this! And somewhat terrified-
I hope you are doing well now and recover completely. "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #2 - 02/21/08  10:39pm
" Wow! I had never heard of this syndrome before. Do you get cold sores? My BF has cold sores, but I never got them, but do get viral meningitis more often than is expected. I don't think the doctors ever did a PCR on my CSF. Do you get this every year? Are there any other symptoms to watch for? "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative

You might also like ...

Cranial Sacral Therapy

By Lauriee01 No comments

I was diagnosed with viral meningitis in September 2007. Since my diagnosis I have been struggling with chronic …

Viral Aspetic Meningitis Clinical Study

By nansueflan No comments

Viral Meningitis clinical study? Does anyone know if there is a clinical study out there on Aseptic Viral …

New to the Board

By nansueflan No comments

Hello, This is another board I'm a member of. I have a bad back 5 back surgeries 3 fusion's. The protocol for having …

Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse