Meniere's Disease Support Group

You are not loosing your mind. Don't leg anyone tell you that. Your symptoms are real and they are vry hard to live with. I lost 45 lbs soon after being diagnosed. I was not trying to either. It just happened. I had so many people come up and say how wonderful I looked. None of them realized they were looking at a very ill person that was trying hard to claw my way through each and every day. Have you had your hearing tested? My neurotologist regularly tests me at least twice a year. He truly knows the challenges I face on a normal day trying to stay active and raise 3 kids. I've gotten used to living in a teeter wobbly world. It doesn't bother me near as much as it used to. No stinkin disease is going to get the best of me. My primary has been a good resource as he helps put all the pieces together where the ear guy only cares about my ears. Hang in there.

your not alone honey. : ) I have to lip read all of the time. I have the tinnitus, low woosh in my left ear. I was offered steroid shots x 2 from my ENT Dr. recently. I am not sure but I think I may try it. What do you think? Keep your chin up.

I have BPPV and have the same symtpoms. People talk to and comprehend one word. All the words seem to fall into one. I thought I was the only one. Hope you are feeling better.

I don't get any dx yet. I will go to a different audiologist outside of Milwaukee area. I will tell you all the story much later.

Thank God again for all of U as I have the same thing! I get hopeful that maybe my hearing's coming back but then it goes again:( I'm very grateful that I have a good audiologist as the ENT I saw is just awful!
I just wonder WHY the fluid in my ear increases at times and where does it come from? Does anyone else feel lots of pressure by their cheek/jawbone/ear? Mine gets so painful at times?!!

This is also neuropathy issue... Your nerves are sending mixed messages to your brain.
Go check out this link and ask the same question there.

http://dailystrength.org/groups/ne...

thank god i am not crazy after all my family have accused me of faking my hearing loss as days i hear better than others, i wasn't aware that this happens i was afraid to ask my ent dr about this as i thought he would think i was faking too

Honey I know how you feel. People get so mad at me when I ask them to repeat because i didn't understand what they just said. its so frustrating!

You are not alone. My kids fight to see who sits on my right side ( my good ear ). The hearing in my left does change. There is more pressure and ringing right before a vertigo attack.