This community is dedicated to people who suffer from an illness that has been difficult to define. As advanced as modern medicine is, there still exist many cases where doctors ca...
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Where can we go for a concrete diagnosis?
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My sister is sick. She has been sick for almost 8 years. She has Baisler migraines so severe, they trigger grandmal seizures. She faints. She has a malfuncioning thyriod, depression, kidney trouble, hormone trouble, chronic fatigue, fibromyalgia, insomnia, confusion, and for the last 13 months, she has been covered in these horrific sores, about the diameter of a quarter, on her face, and torso. Dr.'s said it was a bad case of foliculitis, and the bacteria was resistant to antibiotics, but it wasn't MRSA. She has a very weak immune system. What in the crap is wrong with her, and who can tell us how to fix it? She has been to immunologist, neurologists, rheumatologists, internists, and every other kind of ologists on the planet. We just want her to get better. We miss the old her, and she can't care for her children by herself. We are broke, and broken.
Posted on 08/05/08, 12:08 pm |
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You may be interested in visiting the neuropathy group...
http://dailystrength.org/groups/ne... See the article on autonomic neuropathy 
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My thoughts and prayers are w/ your family and you!! I would be really concerned if she is having sores too now!! There has to be someone you can go to........xoxo
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In the neuropathy department there are specific tests to confirm autonomic neuropathy which is what sounds like is going on... Unlike Fibro - it's very specific... it effects your small fibers - see the neuropathy group for more info.
http://dailystrength.org/groups/ne...
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look into the possability of lyme disease. Lyme is called the great imitator because it can look like so many other illnesses. Depression, IBS, CFS, MS, Bi-Polar, arthritis, gout, Fibromyalgia, Chrones etc...etc.. etc...
More than half never see a tick or associated rash. it can affect any body system. the sympotoms can come and go and be in any combination or any severity. It is in all regions of the country. Here's a symptom list Unexplained fevers, sweats, chills, or flushing Unexplained weight change--loss or gain Fatigue, tiredness, poor stamina Unexplained hair loss Swollen glands Sore throat Testicular pain/pelvic pain Unexplained menstrual irregularity Unexplained milk production: breast pain Irritable bladder or bladder dysfunction Sexual dysfunction or loss of libido Upset stomach Change in bowel function-constipation, diarrhea Chest pain or rib soreness Shortness of breath, cough Heart palpitations, pulse skips, heart block Any history of a heart murmur or valve prolapse? Joint pain or swelling Stiffness of the joints, neck, or back Muscle pain or cramps Twitching of the face or other muscles Headache Neck creeks and cracks, neck stiffness, neck pain Tingling, numbness, burning or stabbing sensations, shooting pains Facial paralysis (Bell's Palsy) Eyes/Vision: double, blurry, increased floaters, light sensitivity Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity lncreased motion sickness, vertigo, poor balance Lightheadedness, wooziness Tremor Confusion, difficulty in thinking Difficulty with concentration, reading Forgetfulness, poor short term memory Disorientation: getting lost, going to wrong places Difficulty with speech or writing Mood swings, irritability, depression Disturbed sleep-too much, too little, early awakening Exaggerated symptoms or worse hangover from alcohol Testing is not terribly reliable. So do not assume that a negative test results means to cross it off the list of possabilities
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