This community is dedicated to people who suffer from an illness that has been difficult to define. As advanced as modern medicine is, there still exist many cases where doctors ca...
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new here...wantd to share my story...
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Hello! I am a newbie here to this site and I just recently joined DS I think at the beginning of April...I just wanted to share my story with you and hoping that someone out there has had the same or somewhat of the same journey that I have been on...
I have been in and out of the hospital ER room since November and I am getting alot frustrated and discouraged with my whole process...I have gone to my gyne, gastro dr, family dr and now, I may have to go to a pain clinic and hopefully a dr there will help me...if anyone has been to a pain clinic or is in one, could you please give me some info on this...THANKS... I recently had a laparoscopy on March 25th to rule out Endometriosis...well, I did have some there (stage 1) and my gyne removed that and a ovarian cyst...I have had "womanly" issues since my teens so this was nothing new to me...I am still having lots of abdominal pain ...lower and upper left side of my abdomen...I am swollen on my left and more so on my right and my family dr and my gyne dr have no idea as to why I am that swollen... I was just recently back at the ER and they just treated me for my pain again...Dr's wonder why so many people are addicted to pain meds... My dr says that I am a mystery and since my name is Tracey, he calls me Dick Tracy and that we will get to the bottome of this... I am getting a little depressed from all this and I don't know how much longer my job will be available to me...I went on a sick leave from Nov-Jan, went back in the middle of Jan and then went back on a sick leave again the beginning of Feb and haven't been back since...I want to be "normal" again and I want to know what the heck is wrong with me... Any help, info or advice would greatly be appreciated... Thanks for taking the time to read this... MAKE YOURSELF A GREAT DAY!! Posted on 04/24/08, 09:04 pm |
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i have also had blood work, ct scans, ultrasounds/vaginal ultrasounds and a barium enema to rule out crohn's disease... 
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hoping that someone has the same symptoms...
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First of all, I'm very sorry to hear about your ordeal. It does seem to me that your doctors should do more than joke and try to nickname you to deal with what you're going through. But having seen the worst of it, I can't ever be surprised again..
I would suppose they have perform things like CT scans or MRI on you, to see why you still have these pain and inflammations? Is this just healing from surgery? There's just no way they should tell you they can't begin to understand why you're going through this. My only suggestion would be to trust your instincts, research online for women who have through similar operations and it might lead you to some forums or sites where you might find a bit of info. At this point, you can only take your health in your hands in the general or alternative medicine and keep knocking on doors until you get heard. Good luck.
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It's my family dr that jokes with me and I am quite okay with it...he's the only one that actally listens to me...I have had ct scans, mri's, ultrasounds and the whole kit and kaboodle...my pain is not from surgery...it is in my upper abdomen and it is not going away...it's not my gyne problem and i think that was just a fluke that they actually found endometriosis and that there is another problem going on...thanks though!! really appreciate it rever!!
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so sorry to hear that you hurt so bad. I went thru almost exact symptoms years ago--even had the laproscopy (2x) with ovarian cyst removals both times. Turns out that I had Irritable Bowel Syndrome, esophagitis, GERD, and severe Gastroenteritis. I do much better today and don't take tummy meds any longer (took Nexium to repair stomache and esophagua, Dicyclomine, Bentyl, Zelnorm, and Xanax for stress that exacerbated ulcers). It may be that you have lower GI inflammation. Have you seen a GI? If not, I would highly recommend one. I do hope you begin to feel better.--ang
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I am actually going for a barium swallow at the end of the month, blood tests and more hospital visits!! I have taken buscopan and that seemed to help but that was an er dr that gave it to me!!
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Do some more research on Endometroisis. You might have had more then stage 1. This can and most of the time does come back.
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This all effects your autonomic nerve system... you should go check out the neuropathy group and look for all the topics that have "autonomic" in the subject line.
There is also a topic on how to find a neurologist that specializes in "autonomic problems. http://dailystrength.org/groups/ne... :)
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