Macular Degeneration Support Group

This is not new to me but becoming much much more frequent, almost every night now.

For some time but only now and then I get horrendous leg cramps. Not like a regular charlie horse, but down the front of my shins, my back side of my ankles and sometimes it grabs by toes and turns them under so tight that I cannot move them with my fingers. Once in a rare while I do get regular cramps in my back of my thigh, inside my thigh or my calf but mostly it is these weird ones.

Last year my doctor send me to the neuro for testing where they do the needles and the electric shock thing.

Nothing happened and my tests came back normal.

These are excrutiating, the ankle, toes and shin ones are so bad that I wake up screaming, but I cannot do anything but wait them out. It does no good to rub them, sometimes that makes them worse. The muscle or ligimate in there gets so tight it stands out.

I put my feet on the floor but no you cannot stand up. I think sometimes if I forces myself onto my feet they might actaully snap or tear.

Taking Potassium does not help, legs cramp pills w/quinine don't help or eating bananas.

They are getting worse and worse and more frequent.

When my illness began 20 plus years ago my neuro and neuro surgeon who saw me in Kansas City was sure I had MS due to other symptoms like numb on one side and more.

MRI's show no sign on it even last year.

I cannot have the fluid test as I have a Arnold's Chiari type A or herniation of the cerebelum and they are afraid to pull fluid for fear of more herniation.

Does anyone have a clue.

I am miserable, not sleeping much with this.

Thank you,
Pat
Posted on 06/23/08, 09:06 am