Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, system...
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Roll Call July 14
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Hey, folks, thought I would start off since I'm up late, it's early for everyone else...
For a few days there, I was close to total remission... very close... except for headache/eye issues and pain from the DVT. Which was four years ago. Which still hurts. A little bit. Except right now, when it hurts more. Okay, well, maybe it hurts a lot. Maybe it's a little swollen. I'm not thinking about it. Except when I am. Which is constantly, for the past hour. But let's think positive... the headache, which was really distracting at about 8:00, seemed to let up around the time my leg started bothering me. So it's just been one or the other, not both. Or maybe the leg pain is just blotting out the headache. Whatever I do, I must not see the doctor. It's much better to worry-- worry makes you strong. Worry is power. Worry is strength. Worry is... a waste of time. Okay, so I'm overdue. I'll make an appointment next week. But I know the phlebitis pain. It could go away in 20 minutes, it could keep me up half the night. Okay, well, maybe it's just my joints that have been better this week, and my energy level. Maybe I'm not in remission. But the cloudy thinking has been better, too. Sense of direction is much better... Okay, so I had a little trouble finding the post office yesterday. That's normal-- hell, I've only lived in this neighborhood for 11 years. So I had to circle around. Well, I circled around twice. I am really glad I got a nice car. When you get lost as much as I do, you better damn well make sure you're driving something you enjoy, because you're going to be driving a lot. I opted not to use any analgesics tonight... then wondered if that was a mistake... then decided to cruise the addiction message boards just to motivate myself to keep the lid on the little brown plastic bottle. That was a good plan. A special shout out to the folks over there. Okay, I'm going to bed now. Wait a minute... I'm already in bed. I mean I'm going to try sleeping. Wish me luck! And hope I started your day with a chuckle... --Catalyzt Posted on 07/14/08, 04:07 am |
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Good morning Everyone!
Cat - Chuckle?...I'm still laughing! Your monologue on the neurotic impact of MCTD was hillarious and I soooooooo identify with it!! After a few really terrible days, I woke up yesterday without feeling the ususal pain and I went on to have the most wonderful pain-free day! Made a huge breakfast, did a bit of housework (then I thought to myself "What the heck are you wasting such a great day on housework for?" So I dropped that immediately and went out. I spent the entire day enjoying little personal moments of bliss and commenting out loud : "I can't believe how good I feel!" I awoke a few minutes ago and I am anxious to see what's in store for me today! I start the Cyclophosphamide today...Wish me luck! Hope you all the kind of day I had yesterday! Hugs, Josée 
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Good Morning everyone ,feeling better today hope I am finally getting that horriable med out of my system. I loved youmessage cat I feel Your pain lol. I am going to try to get my messy house clean today. Josee my thoughts and prayers are with you and have a great day. Lastnight I was wore out when I put my little ones to bed but the little one she is 4 and red headed with big brown eyes begged me to read If You Give A Pig A Pancake Her favorite book. With the wonderful way she said Thank you so much mommy it made me relize I am so glad I am here. This morning I made my little pigs pancakes. The older one 7 said it was the best pancake he had ever eaten.lol. Have a big grin today everyone Jamie
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ELLO to all 2day!! Sorry that I have been MIA again........suffering from anuther episode.......wat else is new.......seems like i have 1 episode after anuther.......really gettin tired of these......my right arm is almost useless.....my head feels like it is under shrinkwrap.....my right eye is in pain every day......GAWD i wish fer a PAIN FREE DAY :(
HEY Cat.........sorry to read that yer suffering too.....:( I wish that it PISSES OFF already.....give yerself a HUG from me :).......HEY Josee......glad to read that yer feelin GOOD........HEY Jamie.....wat R pigs pancakes???? LOL
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Hello everyone!!! That was good cat!!! gave me a chuckle. Do hope you feel better soon. I think you missed the PO on purpose just so you could drive the car around a couple more times. lol. I am glad Josee you had a good day yesterdaY AND TOOK ADVANTAGE OF IT. Silly caps! Good luck with the new med! Glad you feel a bit better jamie. Kids are wonderful eh! cute pig pancakes! Hello MIA girl! I am sorry you are having such a rough time of it. Are you getting all the rainy weather still? Been raining here for 5 days now. I am feeling some better last two days. Low grade temp just about gone. That drags me down on top of the pain.Hips very sore last night but getting limbered up a bit now. A happy smile day to all! hugs marilyn
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Hello all.
CAT; You are funny,Thanks for the laugh! Joseefn; My thoughts and Prayers are with you today! BrandonGirl;Good to have you back on ds.Get some rest and take care of your arm. Dallas;Good to hear you are feeling a 'bit' better. Hugs to all,Lisa
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Looong day at work. My oldest daughter visited me yesterday. I miss that girl since she moved out. Enjoyed the visit.
Cat- love your humor today. Nice to hear from you. Josee- A good day is no time to do house work! Glad you got your priorities straight! You go, girl! jmcull- Love your piggy story! Arent little ones a hoot! Takes so little to make them happy. Maybe we should all take a lesson and enjoy the little things in life. Like pancakes, a pain free day (thats no little thing) and a new sports car! Brandongirl- Hope you have a good day tomorrow. Sounds like you could use one. Marilyn and Lisa- Hope you sleep well and have a great day tomorrow.
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