What is Interstitial cystitis IC

Interstitial Cystitis (commonly abbreviated to "IC") is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as ...

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What do u do when they dont believe u?
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Some of my friends and family dont really understand that IC is really painful and they kind of think that I am just being a baby about all of it and that its not as bad as I make it sound. How do I make them understand how I feel?
Posted on 06/13/08, 12:06 am
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Reminder: This is a support group for Interstitial Cystitis (IC). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 06/13/08  1:44am
" My experience is that you cant make anyone understand you are the only one who knows for sure how you feel. I understand because in the beginning i was accused of dragging it out to long just for attention. This was not something i would wish on anyone to go through. Hang in there "
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Reply #2 - 06/14/08  12:01am
" Wish I could help, but I don't even try to make other understand, I just pretend it's not as bad as it really is. "
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Reply #3 - 06/15/08  12:33pm
" Hi

It is hard to make anyone understand it unless her or she went through it or did research on it. My advice would be to educate them; knowledge is power. It is also important to have a good Urologist that really cares about you. I know for me that having someone that understands what you are going through is very important. "
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Reply #4 - 06/15/08  11:35pm
" I HAVE SAID IT BEFOR AND ILL SAY IT AGAIN GO TO ICNETWORK.COM PRINT OFF THE INFO AND LET THEM READ IT... KNOWLEDGE IS POWER AS THE GENTELMEN BEFORE ME SAID... "
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