Hepatitis C Support Group

I'm not trying to scare people! I'm trying to wake them up and make them aware that there are choices and each choice has to be weighed out. Education. We need to know our options and go in with our eyes open, not like sheep.

You said yourself that you have tried five differant anti-depressants and 6 doctors and still haven't found relief!

It can be frustrating. I think that is what Daily Strength is about. Helping people to think for themselves and not rely on the doctors without knowing what they can expect.

I think Bill, Joan, Missymouse, Tattman, Serenity, Scaredrabbit, Amaterasu, McKenzie, Bruce, and Skeeter brought up some good points, which is the point of having a discussion, it is to get input. Criticism helps too.

It's all good. Everyone has a different way of looking at it, and it's good to be able to see it all, so that each person can decide for themselves just where they want to stand.

AND wherever they stand is their choice! And it's good!
It's all good. Even your saying it's not good, that is good too.

Oh, and Lucy, who just joined in while I was typing, you might want to know that your chances of getting a SVR with type 1A doubles if you stay on the Tx for 72 weeks instead of doing the 48.

Also there was something, you might already be aware of it, but for the others, I posted it last night on another thread, about basing the length of treatment on when you hit 0 detectable viruses, whether it was at 4, 8 or 12 weeks, as to how long to treat.

Here it is:
The last I heard was 50% chance of clearing, and a 70% chance of it returning in 6 months, which multiplies to 15%; so if they are doing better than that now, that is fantastic!

There is a great little book called Herbs for Hep C and the Liver, by Stephen Buhner. He goes into dietary and herbs and supplements for a healthy liver.
We'll be discussing this in the new group I formed.

I rather trust one of the Hep C websites for information. Here's an article from hcvadvocate.
http://www.hcvadvocate.org/news/Ne...

It says that for genotype 1, with a longer treatment of 72 weeks, the odds improve from 18% to 38%. (18% at 48 weeks.) bottom of right column on page three.

Tattman just started a group where we can further discuss these things. Check the member groups, you will need to hit the view all button at the top of the box.

Ever consider politics? It's ALL good?

Gosh, it is so scary. I do need treatment but often wonder, well hope really that a new treatment will come out soon! I have heard many scary stories such as this, I don't mean to scare anyone as I have also heard of others who sail through treatment like a breeze! Until I can make up my mind, I do what i can: eat right, get plenty of exercise, and lots of water. I do take milk Thistle as it has been proven effective in the liver!

I have just finish 48 weeks and I will say I felt sicker before treatment yes I have had plenty of sides and at present I would be working if could but brain fog caused problems at job and I was asked to go on medical which I did it is hard and no sleep,depression but overall I feel pretty good I will take my 6 months the middle of June and with the man above I know he will make a way and if I have to do treatment again I will do I have faith and a positive attitude true the sides licked my but and I made the choice after I read up on the sides I am a 1a and knew what to expect as it was said everyone do not have the same sides my hair got thin and I lost some but that is why they make wigs and some are pretty I look at my girlfriend who has cancer and is complete ball so positive get her wigs and hats and enjoy life in fact just came off a cruise if she has that kind of determination I know I can be positive she keeps me uplifted so much so people just try to be positive and we all can uplift each other to get thru this.

So true!!!!! Congrats to you! God bless you!

Way to go ivernitad!!! When I hear words like "faith' and "determination" it really helps me to keep on keepin' on! Keep the faith,
Ken

On Monday’s call Hep C Advocates United teleconference, Bill Remak let us know that the National Association of Hepatitis Task Forces is collecting personal stories from people with hepatitis who have had problems with access to care, quality of care, inability to afford treatment, and/or faced discrimination or other injustices. These stories will be assembled and used to demonstrate the need to reform our health care system. The Association has identified Members of Congress who have agreed to read these stories on the floor until change is made.

From reading people’s introductions there appears to be a great many stories that need to be told. Please help Bill with this vital project and send him your story.

Send your stories directly to Bill: wmremak@pacbell.net. Also provide your permission for him to publish and use your name.

If you have questions about the project, please write directly to Bill.

I said earlier my doc said some people have no side effects. And some very little don't give up.

I hate to say this but I HAVE NO LONG TERM SIDE EFFECTS..I've been off treatment SUCCESSFULLY for 2.5 years..I am a responder..the only long term effects I have is I am HAPPIER THAN EVER. TX effects everyone differently

Tell me if these are the facts. Type 3 has about an 85% change of clearing and the TX is only 24 weeks.

So tell me, does that make a difference in whether or not a person will have Long term side effects?

24 weeks, vs 48 or 72 for type 1???? How long can you poison the body with more interferon in one shot than the body naturally makes in a lifetime?

Even water kills if you get too much.