Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by bl...
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I am a mother to a girl who just turned 6 and a son who will be 3 in a couple of months. I'm geno-type 1b and am just over halfway done with 48 weeks of tx (due to finish the end of September).
The problem I'm encountering is with how incredibley hard it has been on my children with me having been so sick for so long. First it was chronic bronchitis and asthma problem in the winter of 2006, than in Feb. 2007 I got REALLY sick and diagnosed with HCV and started treatment in November, 2007. I have low rbc's (red blood cells) on treatment. This whole process has been especially hard on my daughter who lost her grandmother (who was the third most important person in her life) in 2005 from cancer. She's been acting out and getting worse as my treatment progresses. She normally scores very high in her school tests, but recently is starting to fail. I finally got her to talk to me (which she didn't want to do because of being afraid of hurting my feelings) and she said she's hurt and angry mommy is sick and doesn't like my treatment. That she's angry at me for being sick. She wants mommy to be able to do everything I use to. I've explained everything to her during this whole process (at her age level), and we even had a nice talk tonight. She knows my treatment will be over in about 4 months. She keeps having dreams about death, and I keep telling her I'm not dying. I know alot of it has to do with her grandma losing her hair right before she died, and she keeps seeing me lose hair. I even talked to her about being aloud to talk to not only myself or my hubby, but anyone she wants to so she can get her feelings out. She said she doesn't want anyone to know she has a sick mom. She just wants to keep botteling them up. My son has become incredibley clingy of me and getting more so every week. What happens is my kids will then "compete" for my attention because my son gets so clingy when I'm more than willing to pay attention to or hold both of them. I even will take special time out and have one on one with each of them from time to time. I give them all the energy I can, I have no more to give. And with the way both kids have been acting, it's really hard for me to cope with on top of copeing with treatment and low rbc's. Has anyone else been through this, or has any thoughts? Posted on 05/09/08, 11:05 pm |
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I am so self centered, I actualy consider my self anti social just so I do not have to be there for anyone but my self. I keep my life so empty and simple so I do not have to feel. My emotions overwelm me because I am so imature emotionaly. I do not take the time to do anything for any one but myself. Just think what if all your chidren had was me. Think how lucky they are they have you and not someone like me. I am trying to make you feel less guilt but I think what you realy need is some help.... 
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This is a very important post dear...my heart so goes out to you..as you know I'm at same point in tx as you. But my kids are 25 and 27 so I can't even imagine...you sound like a truly wonderful mother dear and I so wish I could give you advise..
Can just say I hope others here on DS w/kids can give you wonderful advice... I can just be here to let ya kow I luv ya and will be here w/big should should you need it dear! xoxo
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My oldest child is 17 ~ I have 5~ and at week 10 , he begged and pleaded for me to quit treatment. Basically I told him no and explained at his age level,,, that I either do treatment and hope to slay this beast or I sit here and continue to "rot" . I was extreamly sick also before tx started and have since cleared ..woo hoooo!... stay strong .. my 8 year old daughter understands the concept of "slaying the dragon" but that slaying, only means sleeping ... she understands how important it is for me to make the dragon sleep . AND she is ok with that. Dragon collecting and fantasy runs thick in the minds of all my kids .. and me lol.
The problem I had and you and many others have is these kids realize we are on tx to get better then they watch us go through hell and try to help . they are helpless and they feel it . IT IS hard on them ....... I hope I never have to do tx again but I will if I need too . for my kids ... and now they finally understand it . Good luck with your tx , whats left of it ... and kick that dragons ass. Tami
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Oh, another great idea I did when my kids were younger, and I went through alot of surgeries. I made up a "Chore Game" I would write down simple things the kids could do to help around the house, like shaking the bathroom rug, empting the trash, vaccum fam room, etc etc. Then I would put all of those things in a bowl and they would take turns pulling out the chores. I mean they just loved that game, they would even try to trade and say they wanted to shake the rug or whatever. When the game was over, and the chores were done, then we would do something special, or go for a simple icecream or what ever I could do at that time. It helped me to get things done around the house, and gave them a real sense of responsibility and accomplishment all wrapped around FUN. They would be so proud to tell their dad what they did. Eventually they figured that game out LOL...but it did work for quite a while. I kept it up even after I was well. If we got the house stuff done, we could go to the beach, or a movie, or sometimes I would rent all of the Rocky movies and we would do a move marathon-those times were great when it was very hot outside, and I did not want the kids out in the heat. Anyway...I am always full of ideas..sorry if I over share here. Oh my daughter does something similar, she calls them Cinderalla Saturdays, and when her two girls get their chores done-then they get to dress up in what ever they want and go out to lunch or to get ice cream or go shop for something.What is funny is the one daughter is totally primm and proper and dresses to the tee, while her other daughter may want to wear a ballerina costume with two differnt socks on and bunny slippers! Anyway...you are a great mom, and this time will pass quickly. Keep up as much one on one time as you can also...even if it is just to read a book with them. Oh, I take my granddauthers to the dollar store too-just for fun. I give them 5 or 10 dollars, and let them shop for what ever they want...a really fun place and they really love getting to pick stuff out themselves. A good reward for after the chore game.
Okay, really I am done with my ideas for now LOL! 5starr
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I think Im haveing an opposite problem with my daughter.. I remember her asking me about 4 years ago, if I was gonna die over this disease, and I said, people can die from Nutra sweet ya know? She was about 13, and I thought she could understand by knowing that the government scares us, and that we all will die from some thing. Shes into the big brother thing. I have noticed her pulling back away from me for a long time, since the conversations we have had about this disease. Shes alot like me, she protects herself from pain, or the unknown etc. I think shes backing off, becuse shes scared shes going to loose me. She knows that my treatment was stopped becuz of bad sides, and the more I think about it, the more it seems to be possible. Shes just pulled back, and we use to be so close.
I know teens start dislikeing their parents at this age, but I feel its somewhat about this issue. We were always lovey touchy etc. Not any longer. Has anyone else had a problem with a teen child??? Please share with me, cuz Im sccared for her.. I dont know how you ladys do this tx with young children, I admire your strength!! God bless you all..
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