What is Hepatitis C

Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by bl...

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World Hepatitis Day May 19!!!
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Hey everyone! Well this just came in my e~mail and though I'd share...


You can now send state or city proclamations, activities, walks, concerts, gatherings, whatever you are doing on World Hepatitis Day, May 19, and/or leading up to WHD, to us and we will list them on our ever changing NEWS cycle at our website, www.hepcan.org . We want to hear from you and support your activities this May.

Email me at hepcan1@aol.com or to the webmaster at www.hepcan.org and we will get you a little attention about your efforts and events over the next few weeks.

Sharon

Sharon Phillips
President
HepCAN
(903) 291-9700 CELL (903) 235-0408
hepcan1@aol.com
www.hepcan.org
Posted on 04/21/08, 08:04 pm
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Reminder: This is a support group for Hepatitis C. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 04/22/08  3:38am
" Sound like a major awarness day. Everyday is hepatitis day for me. ok sick joke. I blame the liver.

Thanks for sharing good info. "
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Reply #2 - 04/29/08  8:36pm
" Recent E~Mail:

Dear Hepatitis C Advocates UNITED!

I thought I sent this around a few weeks ago, but have heard from some they didn’t receive it. As part of our activities around World Hepatitis Awareness Day, I have created a sample letter people can use to write to their Senators/Representatives urging them to take leadership on HCV issues. Please consider sending to your networks, friends, family, etc. and ask them to take a few minutes to write a letter. They can email the letter to their Senators and Congressperson or mail to the district office. Mailing to the DC office is not recommended because of delays in delivering mail within the Capitol.



We will soon send an Action Alert preparing for our 5/19 “Call Congress” day.



--Ryan



Ryan Clary

Director of Public Policy

Project Inform

415-558-8669 x224 ph

rclary@projectinform.org "
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Reply #3 - 04/29/08  8:51pm
" Sample Letter:

Date

The Honorable ____________
United States Senate/United States House of Representatives


Dear Senator/Representative_________

As we approach World Hepatitis Awareness Day, held May 19th, I urge you to take a leadership role in the fight against the hepatitis C epidemic.

Hepatits C is the most common blood-borne chronic viral infection in the United States. Once exposed, most individuals remain persistently infected with the hepatitis C virus (HCV), with 70% developing chronic liver disease and its often life-threatening conditions. At least 4 million Americans currently have chronic Hepatitis C, with 25,000 new infections occurring every year. The Centers for Disease Control estimates that the death rate from HCV-related liver disease will triple by the year 2019. No other disease burden is expected to increase as rapidly as that of hepatits C in the coming decade.

Despite these staggering statistics, the federal government has not provided adequate funding or legislation to mount comprehensive effort against the disease. Only 17$ million is spent each year on viral hepatitis programs. This funding is not enough for states to provide testing, surveillance, prevention, and education services-let alone care and treatment for those in need.

(Write your personal statement here. Tell your story in 3-4 sentances. What is your connections to hepatitis C?)

There are two specific ways that you, as my elected representative, can help address this serious public health crisis. First, please support 50$ million in Fiscal year 2009 funding for the CDC's Division of Viral Hepatitis Programs. This would greatly help states to provide prevention services, testing, and hepatitis A and B vaccines. Second, please co-sponser the "Hepatitis C Epidemic Control And Prevection Act," which would create a comprehensive effort by the federal government to address the HCV epidemic.

Thank you for considering this request. Please keep me informed about your position on the issue. If you have any questions or need additional information, please let me know.

Sincerely,

Your Name "
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Reply #4 - 04/29/08  8:58pm
" Write Your Representative
Your message has been sent. Thank you for writing.


Oh yea baby! Now that is how you make a differnece!! LOL And I just forwarded the letter to all my friends and family? Want to make a difference? Here you go:

https://forms.house.gov/wyr/welcom... "
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Reply #5 - 04/29/08  9:10pm
" As soon as I get the action alert preparing for CALL CONGRESS DAY on 5/19 I will post the info for you guys! GET INVOLVED!!! This is your future, your kids, future, your kids kids future!! Do it now!! "
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Reply #6 - 04/29/08  9:32pm
" I know I miss file things and loose them. Thanks for bringing this back to the top for those who missed it or lost it. lol "
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Reply #7 - 04/29/08  9:43pm
" Yea I dont know how much easier it gets than this. All you need to do is copy the letter, follow the link and paste it and personalize it! It took me like 1 minute!!! "
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Reply #8 - 04/30/08  12:01am
" EllieMae also had a great letter written up. She posted it here
http://dailystrength.org/c/Hepatit... "
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Reply #9 - 04/30/08  1:07am
" Is there info on where they are at {the government} at finding some sort of cure for this. "
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Reply #10 - 05/01/08  1:37am
" Good question mike I am going to bump this and see if someone can come up with some info. I am curious about that to. "
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