Hemophilia Support Group

I'm 22 and take AntiHemophiliac Recombinant Factor VIII. Although i'm not able to remember much when I was 2, I know that when I was around 5 I was never really in a lot of pain. I'm not in a lot of pain now. Bruises and cuts is probably something you'll see often, but I've been through it all. I felt it wasn't any different from any of the children I played with. But as a parent, you should always put extra care with injuries. I have lots of bleeds, but it isn't anything that worries me. As long as I am able to continue taking my medication as required then I feel that I'm able to live a normal life. I just accept that hemophilia is something that my family, my friends, and myself have to live with.

im 26 and my lil bro is 7 we both have it severe. Your baby will be fine treatments are much better now and even at the harder stages walking and stuff you cna use kneepads maybe a helmet my bro did at that age they think its cool and fun. Also most kids get at home treatments from the nurse now my mom use to do mine but i recommend a routine treatment plan lik 3x a week it prevents so many of them spontaneous episodes. When i was a kid i had to go to the ER every time i had a bleed and i turned out fine :)