Hemophilia or haemophilia is the name of any of several hereditary genetic illnesses that impair the body's ability to control bleeding. Genetic deficiencies (or, very rarely, an a...
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sports a normal life
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im 27 and have severe hem A. My lil bro has it as well i do martial arts and have played sports all my life and wanted to tell all the moms and peole out there treatment is a great way to live a normal life. Im also covered in tattoos as well. My point is be postive gene therapy is almost here and treatment on a routine is a great way to have you kid enjoy life. Dont put them in a bubble it makes them more fragile and thy will actually get hurt even more.
Posted on 04/29/08, 12:04 pm |
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No problem if you ever need to talk or have any concerns let me know 
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yeah i've been active ever since i was a youngin' lol played just about all the sports just as hard sometimes harder than my friends.
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Hi, I think that you have given a lot of people hope and encouragement. I want to ask with you permission could you share you perspective on this disorder with me. Im a nursing student doing a thesis on children and nurses role in help manageing this disorder. If that is ok with you I don't have to use your name. I would greatly appreciat it.
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You rock! I also took the same path. My Dr's told me not to snowboard or play softball and I continued on with life... sitting out of ball games with nose bleeds sucked but I was thrilled to play! When they told me not to snowboard I hit it harder! :P and I also have a tat :D.... I agree... I choose not to live in a bubble... that isn't living at all....
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You are correct that current drug therapies are safe and efficacious, helping patients lead normal lives. But gene therapy is not right around the corner. Check out what's in development at pharma/biotech companies. It is more likely there will be alternatives like less frequent infusion, subcutaneous injection, inhaled or oral choices) than gene therapy any time soon.
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Hey Alphamale, I was reading your post. I love your positive way of handling your hemophilia. I have a son with severe Hemophilia and would like to use some of your advice to my advantage of raising a well adjusted person of yourself. Please write back.
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Hey Alphamale, I was reading your post. I love your positive way of handling your hemophilia. I have a son with severe Hemophilia and would like to use some of your advice to my advantage of raising a well adjusted person like yourself. Please write back.
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My son is 2 and a half and was diagnosed over a year ago. My concern for him os that he will have a lot of restrictions …
We are currently looking for adult patients with Haemophilia A and the parents/carers of children with Haemophilia A to …
Ok i read a ladys entry about her 2 year old son that has sevier hemophilia about him always being in pain and not …
