Hearing Loss & Deafness Support Group

Hi libralass, yes I hope you do also. I've lost my hearing and have terrible tinnitus and sometimes I wish someone could just hear what I'm going through, but then I think if they could I would probably get some strange looks and might make me feel even worse so I don't know which would be worse because I sure get tired trying to explain why I'm acting all upset, when if my family could hear what I'm listening to they probably would never acuse me of just being a hateful person at times.

In my case, my hearing left and the constant hissing tinnitis replaced it. I think that's truly what happened with the auditory nerve; it replaced the stimulation of sound with it's own internal "noise". Thankfully, mine is not debilitating like some people I've read posts about. I try to ignore it and not let it drive me crazy.
You may find a continued deterioration in your hearing; it's not uncommon. Stay connected to these forums and you'll find resources and encouragement. Look into the possibility of cochlear implants as well. There are clinics doing them in your part of the world. There are three manufacturers each have a website for more information. By the way, many cochlear implant wearers have said that their tinnitis went away after they got implanted.

While it's an isolating position to be in, hang in there... there are resources for us. But it's expensive and takes time to work through the systems. If you continue to inform yourself of future options, you'll be ready if those changes do occur. And if they don't, you can be an advocate or encourager for someone else (and be thankful)...

Thanks for replying. Interesting about the cochlear implants meaning tinnitus could go away,
Sue

Hello

i will be SORRY before i start, im profoundly deaf, cant have cochlear as it may not work on me, its long story and history lesson, so i wont bore you with it.

Anyway my friend also profoundly deaf HAD COCHLEAR IMPLANT, but SORRY to say his tinnitus has risen, im not saying its same for everyone, im just telling you how it is, facts from my friend..i have tinnitus 24/7 not just hissing and bells,orchestra, brass bands etc etc, i also get people talking, but i jokingly tell them where to get off lol.

Yes, I sure can. I'm 45 now and have had lifetime of this since I was a child. I find if I take a Vitamin B complex with all the B vitamins, it is a definite improvement than not to take any B vitamins at all.

Take care... :-)

You have to remember its not the easr that send out tinnitus waves....its damaged nerves, etc...the Brain waves gives tinnitus, not the ears, maybe operations on ears and damaged nerves etc...like mine...

But i do take ONE 5mg Diazepam at night, And its gets me 4hours sleep..better than the odd hour here and there like it used to be, i wish i could take them during day, but they are highly addictive....so might be best i didnt, on bad bad occassions when tinnitus is firing HIGH..I DO take 1, and it relaxes me, so i guess it relaxes the brain and slows down tinnitus, doesnt stop it, slows it down, so 1 can handle it better..

I hope this helps, its worth a trial try 1 5mg Diazepam at night and see????

I'm not totally deaf, some hearing, but deaf in the high frequencies. Yes, I hear tinnitus all the time, sometimes it's so loud it's actually "painful".

A POWERS

Thats where I am at now - very very loud tinnitus in both ears and a hearing loss... not totally deaf, but scared of the future, only 46 wondered what the next 30 years will bring and if i would still hear the horrible T even if i went totally deaf - seems yes ... yuk

No one here can tell you if you will or will not hear the Tinnitus or become more deaf in the future. Only time will tell. The one thing you can do is embrace life and be glad you're alive and have all your other senses.

I used to be so angry about my tinnitus, but it was a poor way to cope with life. Accepting tinnitus and deafness was the best thing that ever happened to help my happiness.

I've had tinnitus for 12 years now, and it's all I know now. I've become so used to it that I actually don't realize I have tinnius until I talk about it. You'll get used to it. You have to, in order to start "ignoring" it.

Pazzesca
I am used to it, had it longer than you LOL and I'm ok about it, but was just wondering if I went deaf would I still hear tinnitus...
I think we are both at the same stage of habitation with the T, I am ok really...ofcourse we all have days when it seems louder than others, but now the increasing deafness worries me more than the tinnitus.