Fibromyalgia (FM or FMS or Fibro) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue...
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Edronax (reboxetine)
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Hi, could anyone with fibromyalgia who has ever tried Edronax please tell me thier experience.
I have had fibromyalgia most of my life and had given up hope of finding any treatment. I am proud to say I have built myself a happy existance despite being in pain most of the time. However this has all just been dramaticaly un-hinged in the last 3 months. Its a long story, you could skip the next paragraph if you just want the curent info. Three months ago I was told I had ADD after doing a survey with my stepdaughter (who we're trying to help with aspergers) just for the heck of it. It was a shock to me as I had unfortunately always asociated the disorder with naughty little boys, so i dismissed it. However after some research i decided that alot of the problems I have with concentraton and managing tasks could indeed be explained by dealing with ADD. So i asked my doc for a second opinion, he laughed telling me that I didn't seem the type, but he understood why i wanted it checked out and sent me to a psychiatrist. In short, the phsyciatrist diagnosed ADD. He then told me about edronax, that it was essentially another type of anti depressent that didn't work on seratonin, but another chemical norepinephrine, and was having alot of success in helping ADD. As i could start taking it without interupting my standard SRI, i was happy to try it. After 3 days on edronax at one half tablet daily i noticed my feet were extremely cold. It took another three days for me to realise that it wasnt really unusaul for them to be cold (i always got in trouble for trying to keep warm by putting them on my husbands at night), it was unusual for me to notice it without touching them with my hands. And the only time i had noticed it before was because i rubbed them when my legs were aching. Thats when it hit me that my legs were not aching. Or my hips, or my neck or upper-back, or elbows. The only pain i was experiencing was actual muscle aches, from the carple tunnel in my wrists, and lower back and neck pain from the general weekness in my body coupled with a well endowed chest. That was 6 weeks ago, I am currently on one half tablet 2 times daily. The only side effect I've had was the first two days when I got goosebumbs for no aparent reason all over my body within half an hour of taking the tablet. I've only had one bad pain day since, and to my utter astonishment the panadiene fort not only took away the pain but sent me to sleep! i thought i was imune to the stuff and only used it to take the edge of the pain. Tiredness is deffinately still an issue, but it is hard to tell at this point if its th CFS side of things, or just being so badly out of condition that the extra activity i'm able to do is too much. I have since learnt that efexor also works on norepinephrine along with seratonin, which explains why my cousin also with fibro did extremely well on it. The strange thing is how scary it all feels. As i said, i had learnt to be happy with my life, and now i have a whole new one to build. The ADD side of things is also improving, there is not nearly so much un-nessesary clutter going round in my brain. Where does one begin with re-habilitation after coming out of a coma? thats about the point i need to start at. Anyway, thats another topic. All this is very exciting for me(despite my insecurities), and i am hoping dearly that it will help others too. There is alot of information if you google edronax and fibromylagia, but its mostly burried in technical mumbo-jumbo, so I can't wait to hear of any other cases, good or bad that have tried it. Posted on 06/27/08, 08:06 am |
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Hey I know it's been a while since you posted this, but I just found this by doing a search for reboxetine. I am currently in a trial for reboxetine. I have been on it for about 9 weeks now. It seems to be helping my pain alot. At least from the waist down. I still have alot of pain in my upper back/neck/head areas. Although not quite as intense as it used to be. It is only slightly helping with energy, in fact it sometimes makes me a little groggy. but the trial doctor says this could be a dosage issue, since I am still in the blind portion of the study we don't know what my dosage is. Once this part is done (3 more weeks) we can play with the dosage to find what works best for me. At the end of the whole trial I will see a specialist in fibromyalgia recomended by the trial doctor for possible other treatments to go with reboxetine. (something to help with energy, sleep, diet, etc.) Hopefully, this drug will prove to be helpful for many of us. So far I have gone from someone who could barely sit up in the mornings because my back hurt so much, to no lower back pain at all most mornings. Hopefully the pain will continue to improve all the rest of the way up. How is it going for you? You are the first person I have had an opportunity to communicate to who is also taking this. Hope you are doing well. 
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Hi Jacksmom! Thanks for replying, thought no one was ever going to find my post!
I am doing very well, still no fibro pain ( I have athritis in a few places, that has been playing up, but its very localised, not like the fibro). My doctor and i tried to reduce my prozac, feeling that my depresion was caused by the pain I'd been in, but i found the depression returning and had to go back to my old dose. Depresion is a family problem, so it isn't really suprising. I do still get tension headaches, wich affect my neck and shoulder area, but now I can tollerate massage i find it helps imensly to get my husband to give me a gentle neck rub. Tension headaches/migraines are another hereditary problem in my family, so it could be either just my genes or fibro pain, I'm not sure. They have been lessening in frequency tho, down to a couple of times a week. A friend has recently started the edronax and he also takes prozac. His results have been good, tho not as complete as mine, he finds the very cold climate where he lives is still giving him some trouble with pain, although not to the degree it did previously. Mentaly he feels much clearer in the head, but is still very fatigued. I am also easily tired, I've still had a couple of those days where even finding food to eat in the cupboard was too much effort. However because I am doing so much more than I ever have i cannot be certain whether this will be a permanant state or it will improve as my stamina increases. I pray that the latter proves to be the case. An interesting side point, not having the fibro pain has made me more aware of other odd things in my body. I had previously ignored the problems i had with my hands, but have just had carpal tunnel diagnosed. I can also feel the athritis where i broke my ankle quite clearly, where before it just merged with all the other pains in my legs. If your lower body pain continues to respond to the reboxetine after the trial, but not the upper, perhaps it would be wise to just have things checked out again incase theres something else going on aswell. I am very pleased to hear it has at least given you some releif. Please let me know how you go in the next stage. Fruity
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