Fibromyalgia Support Group

I'm sorry you are having such a bad time with Rhuemys. My Dr. ran every test he could think of, then sent me to a rehumy. He did the tender point test, said yes, you haave fibro, and sent me on my way. No help whatssoever!
Thats when I had insurance, now I have none, so cannot afford to see another rhuemy.
Maybe you should see a neurologist. I have been reading up on it, and they will sometimes treat fibro. It seems to be a neurological disorder, in my opinion..but we know what opinions are compared to..LOL!

I wish they would find something to help ALL of us. NOBODY in their right mind could make up this much pain!

Ugh!

I was on my search this past summer for a Rheumy, as my doc recommended that I find a good on.
As I made the calls, I suddenly found out that Rheumy's will typically only diagnose Fibro, but will not treat it.
I waited nearly 6 months to get into a doc down at the university where she too gave me the "we don't know enough about fibro" speach.....told me to start swimming, take a buttload of vitamins (some of which are helping) and to get sleep.

I'm still uncertain of her....but I feel this is my last choice. But there is a community class coming up that I want to go to. It's on how to live with Fibro given by a doc. I don't necessarily need to hear the how to live with Fibro.....as I'm alive again today and I think I've figured out the "how to live with it". I need to learn how to manage it part. LOL.......But it's given by a doc, who seems interested in Fibro. And that's what I need. A doc who believes in Fibro!

I wish you luck hun...I understand your battles here.

Thank you, my journey continues I guess.

The Rheumatologist told me that the man who first reported fibro is still alive and is claiming that it is made up!! I felt like saying, "So what??? What about the millions suffering from it now???"

The rheumatologist I go to does not believe that there is such a thing as fibromyalgia. He thinks it's a hoax. I do have OA and RA and he does belive in that. I have not found any doctors that believe in much of anything except getting the cash out of me. I don't trust doctors and their little pills.

They think that we make it up so we can get drugs. I can take enough drugs to kill 3 men, and still function fully. It's because I don't get a buzz, or a high, it's because when you are in pain, the meds don't give you a buzz or high, they treat the pain. It's impossible to get a high when you have real pain. Good docs know this.

I had little luck with rheumy's. I still have to see one, to satisfy the ins. co. but the doc that actually helps me live day to day, and have a reason to keep pushing is my Pain Management Doctor. I think you need to consider finding one. My PM doc is my utter salvation (not trying to sound sacrilegious), but true.

I decided a long time ago, that I'd rather have quality of life, than quantity. So, since the medical establishment is falling all over themselves trying to decide if FM is real or not, and what new and fascinating drug is the new miracle drug, I've decided that I'd be much happier just treating the pain, thank you very much. IF they ever come out with a drug that helps, then I'll try it (don't get me wrong, I try all the new drugs, I just don't put alot of stock in them). But for me, my narcotic pain meds are the only thing that work for me, all the time, everyday. I'll stick with those, thank you.

Otherwise, I'd be in a world of absolute pain, waiting for the new miracle drug to "see" if it's going to work, and see how "well" it's going to work if at all. Nope, not for me. I'll take my narcs thanks.

Just see if you can find a PM doc, and hopefully you'll find a good one the first time around. I went to two or three before i found this one. But you know, she was worth the wait. First med she put me on, first day I saw her, once I took that pill, I was 100% pain free! Can't put a price on that. (Well, they can, that particular med would cost me $1437/mo. w/o insurance.)

God bless.

The thing is that I dont take any drugs for my fibro. I changed my diet, walk every day and take vitamin supplements. I'm not asking for drugs, just medical input on treatments i suppose.
I will look into a pain management doctor.

Thanks for the replies and the advice :)