Fibromyalgia (FM or FMS or Fibro) is a debilitating chronic syndrome (constellation of signs and symptoms) characterized by diffuse or specific muscle, joint, or bone pain, fatigue...
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Ok, here is the story. Last week I was in a flare,not too bad but brought on by too much stress {I am the caregiver to many who don't always behave kindly}, very packed-physical schedule and some mild whiplash caused while training a young horse. I did not rest as much as my doctor wanted me to and now I am in a full blown flare. I am like an invalid. I can barely walk to the bathroom without feeling like I am going to faint,everything is stiff, I have itching like I have fallen into nettles, no appetite,dizzy,foggy,depressed,headaches...........the list goes on. I have never felt this bad in my 13 years of Fibro. Especially in summer. It is scary. It feels as if I could actually just slip off in my sleep and never wake up. Sounds silly doesn't it? But I cannot explain it, that is how bad it feels.
Please tell me I am not the only one out there that has ever felt like this. Most of the time I am quiet about my Fibro. I don't complain and I don't burden the family. I just push on. However I feel scared about the way I feel. Someone just let me know their flares have felt this way. That I am not alone. Sue Posted on 07/15/08, 12:07 am |
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Hi Sue, I'm Sue too - no pun intended :) Yes I have felt that way - most recently after my 2006 auto accident. I was in a flare for many months and off from work for a year.
Had not a job opportunity come knocking (when I wasn't looking) I don't think I would ever have gone back to work, as it's really, really hard on me. So sorry you're having such a rough time - I hope you will find some comfort here with us. 
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I just signed on and read your post - I really feel for you and can truly say that I do know how awful fibro can feel when you are having a bad flare. You are not alone. Here is a big hug. I hope you treat yourself kindly and rest.
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Hi, You described exactly what I am going thru now. I told my daughter last night this is the worst I've felt. I know what you mean when you say you could slip out when you're asleep.
I don't have the energy to hit a fly. I have been this way for about two weeks now. I hurt so bad. There is not one place on my body that is not in pain. I am so tired that it is an effort for me to even breathe. I wish this demon would get out of my body. I ask myself sometimes what did I ever do that was so bad that I have to suffer like this. Sorry about the ranting.
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sorry you are feeling so poorly. I use to tell people that I felt like I was dying, I felt so bad. I feel a lot of this is mind over matter.when in a lot of pain keep moving, I think there are more problems when we do not keep moving.its just such a cycle we live in, its all about how well we sleep, or do not sleep. I am in a huge flare right now. hope you start feeling better soon.
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That is exactly how I felt when I had Lyme Disease. Tested negative twice. Then finally tested positive. It was awful. So were the antibotics I had to be on to stop the Lyme. I still test positive, but it's not active at this time. My Dr. said it can and does come back. Basically out of remission. Just what I didn't wanna hear. Please get tested and retested. Just to rule that out.My Fibro. Dr. is 99% sure that's how I got Fibro. Hugs, Donna
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Fibromyalgia is inherited. I have it and have had it for forty years, I used to go to doctors long ago and they told me it was all in my head. About 4 years ago a doctor told me I had Fibromyalgia. Well I have tried lots of things chiropractor , tens machine, heat, you name it I have done it. But it is always there. Now on top of everything I got kicked flat footed in the knee, and my doctor told me today that I had to have surgery on my knee, torn cartlidge. I usually stay tired, can't sleep, or I sleep all the time went through a phase of sleeping all the time. I have anxiety. Stress really bothers it. I was also tested for sleep apena, and I was told that I have it so I have a machine that you wear every night to bed This is suppose to help the situation. I have talked with several people and they also told me it was inherited, just like me my daughter and granddaughter have it also. We just have to learn to cope with this terrible thing and sometimes it seems it is almost unberable to do. I hope you get to feeling better, put a smile on your face and say I can whip this, I know I can. Believe it. Love Rachel
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Sue, I feel this way everyday! I only consider myself in a flare if I get the electrical storm feeling and my brain goes foggy. Everything else is just another normal day in the life. I have lost jobs because of this, my physical appearance has suffered, I have missed family weddings or showers. I am 34 years old and cannot be a girlfriend or have a baby because I can barely drag myself through the day!
I am the same way when it comes to keeping quiet. For the longest time most of my family thought this was a fake disease. So I have just kept my silence. I could be in the worst pain and you would never know. I think that is part of the problem with fibro...technically I look fine, maybe a little tired, but who isn't? You are not alone! Heather
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