Fatty Acid Oxidation Disorders Support Group

My daughter Lacey now 3 Has MCAD...A type of FOD. At her last visit in Feb They said she had not gained any weight from her Last visit in NOV. Lacey Has had many Hospitalizations since she was born. The last over night stay was Feb 12...She stayed for 3 days. They weighed her going in and they state she did gain or lose anything while in the hospital. She on the high carb/Lowfat diet as recommended by her dietician, So i dont understand the non weightgain. She is suppose to be seen by the metabolism specialist ever 6 months right now due to her age (unless sick) But with all the times she has been sick she gets seen every 3 months or sooner if sick. Everyone that sees her says shes tiny for her age. But my 9 yesr old son is little too. He's 54 lbs. My son also has a big appitiete so im not sure what the problem is. My middle daughter is 6 and about 39lbs. What could be going on. Anyone else expereience this?
Posted on 04/03/08, 12:04 pm