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Daughter hospitalzed (long)
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Today my 20 year old daughter was finally admitted for inpatient hospitalization.
She has been in a Partial Hosp. Program at the same hospital since the end of November. Her insurance company, Aetna, in mid nov. refused to cover inpatient treatment, inspite of being told of her history of serious suicide attempt, and fathers family history of suicides. Apparently with the Aetna plan she has, you have to actually attempt suicide to get inpatient.
She was weaned off seroquel (too sedating, starting visual hallucinations) and just started lithium when she entered the program (after a 2 week wait for an appt. anywhere in my state following the refusal of inpatient) They put her on Geodon and weaned off the lithium. She was doing well in the program and more herself, when she started getting *black spots and ribbony images* in her peripheral vision. They changed her to Zyprexa shortly before xmas. It was too sedating at first, then lowered. Lowered dose brought out raging episode, reupped it a bit. Then cam the crash into severe depression. Both she, her live in BF and I kept reporting that this med was making her worse. Each week, she was prgressively in more despair, feeling no interest in anything, and could only cry and smoke cigarettes. Every night for 3 weeks has been trying to give her pep talks to hang in there, while she cried without knowing why.
In her program, I dont think she could open up and express the despair, or cry in front of others, but we were reporting it to her case manager. The CM and pdoc kept telling her to give the Zyprexa another week.
Finally, Tues. night I sent a detailed email to the CM and pdoc saying Kristine had expressed that she did not want to continue to live if this was how she was going to have to be. They kept her on the Zyprexa and added Wellbutrin.
Two more days of despair. Finally last night I promised her she would not go another 24 hours on this medication, I was doing something. I left messages for CM, pdoc, called the oncall pdoc to leave a message, and sent another detailed email to one of the department heads (its a teaching hosp. at a state univ.) who is a friend of my neighbor. I was sure to spell out that I was not complaining, just grasping at straws to get my daughter the help she needs, as she last night said she didnt think she could hold on through the weekend.
That seemed to get some attention. the CM asked me to come in to program w/K, Now the pdoc (nicknamed Doogie Houser he is so young) and everbody else is paying all kinds of attention to me and my daughter. Somebody finally managed to convince Aetna to cover the inpatient. They are immediately taking her off the Zyprexa, putting her on the lithium and Geodon again, and keeping her there to monitor the med changes, since normally they would wean her off one and wean on to the other. Once she is stable for a bit, they want to tritrate (?) her slowly on to Lamictal and wean off the Geodon.
She is having a bit of a hard time with the no smoking (not even outside) policy, but got a patch.
A few minutes ago she called, and already sounded more like herself.
So, after going up to hosp. to drop off some things this evening, I then came back home to bring my 5 year old to her school for *Family Fun Folk Dance Night* Talk about switching gears. The little one had been looking forward to it all week, and I just couldnt make her go without.
It just so frustrating that a) the insurance co. wouldnt pay for inpatient to begin with, so we did this process backward, partial hosp. first, and b) the PHP wouldnt listen to the patient and family saying a med was making her condition worse, until she wound up inpatient and suicidal.
Im exhausted.
Posted on 01/25/08, 09:01 pm
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Reply #1 - 01/25/08  10:03pm
" So sorry to hear that it had to come to this. Hopefully the inpatient program will bring her to where she needs to be...my sister did well after he inpatient stay (cutting and drug abuse). It seems like your daughter has been on a roller coaster of meds that has made her worse off than the BP alone would have...I can't believe that they screwed around with her body chemistry that much!

I also understand the frustration about the insurance...my sister was in the hosp in 2004, and up until last year she was still having collections call her because the hospital 'coded' it wrong, and then wouldn't pay the late fees to the insurance company (United, I believe), even though it was their fault! GAH!

When will the doctors just learn to listen to the people that know the BPers best? "
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Reply #2 - 01/25/08  10:04pm
" Oh, and PS...hope your daughter really gets some good help, and is back to herself soon! And I hope that you are doing ok... "
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Reply #3 - 01/25/08  10:22pm
" arrrrrrrrrrghhhhhhhhhhhhhh insurance comapanies Here in pa they say you have to threaten to kill yourself or someone else AND have a plan. I crazy is that? I said to them what about all the kids that do without telling anyone.

I have found that in my short experience with a CM that it is much better for her to handle it. I honestly believe if it were not for her and an advocate from another organization that my son would not be in the hospital today. I guess they think we as mother's are to emotionally involved. Even the doctor said to me on Tuesday when he found out the advocate had to leave for a meeting He says oh great the most important person who is least involved left the CM pointed out that she was probably the least involved. I was like excuse me but ignored his snide comet as I was there just to make sure my son gets help.

The thing that frustrates me is if we did not try to do anything they would be like why are you not trying to help your child. grrrrrrrrrrr

Just so you know I am involved with the advocy allience who is trying to get all this changed. Stats have come back that say more and more kids are being rehospitalized. The alliences few is that well apparently the services in place when they come out are not working or they are not in long enough.

I have also made 2 complaints with Community Care which handles the mental health part here. If you have something like that in your area I would encourage you to do the same. They did it right over the phone. I know its just one more thing but unless people complain nothing will change.
There is no reason why your daughter should have suffered for as long as she has. I am so sorry for that.

I am sorry that you had to watch her go through this I dont know how you did it.
You are a good mom being there for her and going to bat for her. Keep up the good work I am sure she appreciates it and knows how much you Love her. "
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Reply #4 - 01/26/08  4:02am
" I'm glad she's in hospital & can get her meds sorted out. It sounds like you both need a break & you know she's in safe hands.

I think it's terrible that over there you have to have insurance to access mental health care. In New Zealand it's free & meds are subsidised. Having to go through the stress of finding a way to pay is something someone unwell doesn't need!

They're bringing in the smokefree thing in our local hospital soon, I pity the poor nurses who have to look after mentally ill people who want a smoke. I can see it getting nasty! A lot of the time the nurse like to puff with the patients.

Good luck, you're in my thoughts.

xxx "
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Reply #5 - 01/26/08  10:27am
" Good advocating!!! When it comes to our kids well being, no matter their age, the squeaky wheel gets oiled. How to "work" through insurance barriers takes creativity and persistence. Hope the lamictal titration is successful for your daughter on all fronts. It has reduced the severity of my daughter's depressive episodes sisgnificantly for the past 2 years.

Take care of yourself...and blessings to you. "
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Reply #6 - 01/26/08  12:10pm
" I sure can understand what you are all saying and I too am with you despite I too being so exhausted that I don't even know if how to cope since my story is pretty much like yours except that its not my child (its my husband) who's in the hospital right now and the doctor's are FINALLY starting to listen a little since they also suspect that my husband could have a mix of bipolar and schizophrenia and he's having a hard time in the hospital not sleeping too. There is one good thing here though: All healthcare is covered by the gouvernment. Big hugs to all! "
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Reply #7 - 01/26/08  12:40pm
" You and Kristine are both in my prayers! Be strong! Sending hugs, love, and prayers! "
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Reply #8 - 01/26/08  2:02pm
" Thank you all for your support! It really does help.

Wish I had time to post more, but I am leaving for a visit. (Thank goodness they didnt have to send her out. If they didnt have a bed opening, they were talking about finding one that would have been over an hour away... just would have added to the stress.)

You are all in my thoughts and prayers, along with your loved ones as well.

Thanks "
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Reply #9 - 01/27/08  8:54am
" in my state someone can have a person commited for saying they want to kill themselves or harm others...even if it isnt true. the system is so messed up. Hope your daughter gets help and back to herself soon. My BP mom sunk into a depressive state and went to the Er when it got really bad, from there to inpatient(short term) doing much better now "
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Reply #10 - 06/05/08  10:01pm
" So sorry to hear you and your daughter have to go through this misery before she can get help. You responded to mine post, my daughter is in the hospital, to make a long story short, cmh come last thursday and said she only needed counseling, after cutting her wrist, so we contacted res. rights advisor and got the fight going and also i called nami the person in our area and today we had cmh doctor at the hospital and she did her eval on megan and they called me two hours later saying that her recommendations are at least 6 weeks at a long term hospital, and gave us other options when they do release her. So she is at White Pine Hospital and then she will be transferred in a day or two to Hawthrone Hospital. Good Luck.

Karen "
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