What is Epilepsy Seizures

Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. The condition is named from the Greek epileps...

Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
Discussion:
Anyone Had VNS Surgery For Epilepsy?
Watch this 
View More Posts Ignore
In one month I am probably having Vagus Nerve Stimulation Surgery done and am getting scared to death, is their anyone out there that has had this done?
Posted on 08/14/07, 03:08 pm
RATE THIS POST:
Inspirational
Moving
Helpful
Creative
5 Replies Add Your Reply
Reminder: This is a support group for Epilepsy & Seizures. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts Ignore
Reply #1 - 08/14/07  5:12pm
" Hi.
I can imagine you are frightened. I suffered with epilepsy brought on with each pregnancy. (temprol lobe epilepsy)I have three children. Each time I am due my periods, I still faint or have small seizures. I know when its going to happen so im in control.
My cousin who Im a carer for has had this treatment done. He had it implanted last year. You can see it in his chest & it goes up the side of his neck. Sadly it didnt work for him. But he is mentally & physically handicaped who has life threatening seizures.
I wish you lots of love n hugs.
Jackie "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts Ignore
Reply #2 - 08/14/07  5:52pm
" thanks for getting back to me, can you actually see it and feel it in his chest?I'm so afraid I won't sleep with this thing in me "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts Ignore
Reply #3 - 08/14/07  9:27pm
" Hi. This is one thing the doctor has talked to me about. That and surgery, however we are leaning mre toward surgery. I have heard good things about it and have heard it is a very simple procedure. Big hug for you and keep me posted. Best, Katie "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts Ignore
Reply #4 - 08/15/07  4:54am
" Hi. You cant see it in the chest but you can see it up the side of his neck. Its like a deep vein showing. Each time it kicked ito action it made his voice go higher ? Yes quite strange. He had no problems with sleeping, so you should be ok. Although it hasnt worked, he has it still implanted, but not activated. I hope this helps. Jackie "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts Ignore
Reply #5 - 08/15/07  11:01am
" Hi i have had vns done i was so scared but now i am so glad.I had it done oct 2006 i go back every 2 weeks to put up the little computer.But please dont be scared if you have a seizure you just put the magnet across once the fit stops its great from shirl "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative

You might also like ...

Vagus nerve stimulation (VNS)

By lovies54106 3 Replies

We are considering this Vagus nerve stimulation (VNS) ASAP....any feedback? Love to all! Dawn

Vagus nerve stimulator

By DrOrrange 16 Replies

Any of our members have a Vagus nerve stimulator (VNS) and want to share their experience? As many of you know VNS …

Has anyone had a mid temporal lobectomy?

By Sharron617 2 Replies

I would like to talk to anyone who has expirienced brain surgery for epilepsy treatment. I want to share my experience …

Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse