Epilepsy & Seizures Support Group

I don't know if there is a link or not, but if you think about it, your brain has just gone through some major electrical activity, as has your body, if you're talking about grand mal seizures. I would imagine it wouldn't be unheard of to have a headache after a seizure.

When I first started on Tegretol I got HORRIBLE migraines. We're talking the first month or two every day, but once I get adjusted, it's all good.
As for after I've had a grand mal, I think once I did get a headache, not sure if it was a migraine or not though as it was a year & a half ago...

I have the same problems with the seizures and migraines. After a grand mal I use to have a headache so bad that I would have to put an ice pack on my head for about half an hour and then I would sleep for an hour or better. Then I would be able to function on a level where I had some level of knowledge of what I was doing. If you have any more question don't hesitate to email me back.

I wouldn't necessarily call them migraines. The more seizure activity you have the more headaches you will get. Mine personally are terrible as well. It is not like a "typical" migraine headache. It is all over. Right after I have a seizure it is like a sharp stabbing pain starting at the base of my neck stabbing upward. My "neurologist" told me it was progressive migraine disorder and said it would only get worse. I also have a blood clotting disorder so they think some of the headaches were caused by blood clots passing through my brain. One thing I can say is that I am pregnant now and alot of things have slowed down including the seizures and headaches and things are alot more enjoyable. I did research and there could also be a link between epilepsy and hormones in women. It is worth talking to your doctor.

I have seizures, I have migraines. I get severe headachs after seizures, but I can't say they're migraines. I get migraines without having seizures. I asked my neuro about a link. I was told 70% of people with seizure disorders have migraines but that does not necessarily make it a link. You can have migraines without having seizures.

I use to get migraines (full blown) about 60% of the time before seizures (the big spells, (I have both absence seizures and grand mal), now I have seizures without migraines but never a migraine without a seizure or 2. I don't know if it matters but the reason all this came about for me was because I had an accident (I had head trauma 9 months ago, and it's just gotten progressively worse and they can;t find an actual reason - drs. ha). Anyway hope this helped.

i used to get migraines all the time,, took the demirol shot at the hospital etc.. then switched to imatrex meds...they worked fine but knoced me out.. then topamax was added into the mix and the migrianes backed off....
now every now and then i will wake up either in the night or the morning with a horrid headache that will only last for about 1/2 hour or so.. dont know why.. forgot to mention it last visit..but sometimes they will wake me up in the middle of the night...

hugs
heather

i get bad migraines after a bad seizure or after a lot of bad seizure activty. my neuro said it goes hand in hand and more people who have epilepsy get migraines then the general population. believe me i feel your pain. you can read about it on epilepsy.com

Hi to Businessmajor2010. My epilepsy is as a result of a head injury that I suffered 23 minths ago. Ive been told that I should make a full recovery but no one can tell me when. I have suffered from migraine since i was a child and have noticed that I now often have a migraine attack after a seizure but sometimes the migraines come on seperately.

I just wanted to say thank you to everyone for your replies it really does help to talk to others who are going through similar experiences. What a wonderful place we have found in DS.