Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. The condition is named from the Greek epileps...
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Vagus nerve stimulator
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Any of our members have a Vagus nerve stimulator (VNS) and want to share their experience? As many of you know VNS reduces seizure frequency by about 50% in 50% of patients...
Dr O. Posted on 11/20/06, 12:11 am |
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Please do tons of research on this device.
I have heard nothing but horror stories from alot. Please don't let the numbers above fool you. Talk to actual people who HAVE this device and ask them about the terible side effects this does to a body. Also keep in mind that this is permanant. The coils can NEVER be removed. 
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Yesterday I went saw my VNS doc.
And the magnet had been over the VNS for 2 days. When he took the magnet off it started up again in my throat and almost had me in tears and the doctor could see how much pain I was and he turned it off. I'm not sure exactly what he did I just know he didn't lower the MA or pulsewidth. anyone have any idea what it might have been? Sarah
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my son has it and it does not work. even when we use the mag.
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I am so sorry this is not working for your son. Please stop by the www.vnsmessageboard.org maybe you can share you input.There are over 700 members who have dealings with this device and some are just horrid to read.
IS the device still activated in your son or did you have it turned off? Do you see any side effects since the implant
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hi i'm new here and now very scared! my son is 14 and has been dealing with epilpsy for over 10 years.. we have alot of different meds.all have failed him.. his new dr. is considering the vns,and my husband and i couldn't have been more happier,till i started to read all of these post's.. i was thinking this was a good thing... she hasn't said anything negative about this process and only has said good things was have an appt. this tuesday to dicuss this implant and see what's her plan?
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My son has it and it goes of every 1.8 min for 30 sec ech time and does not work. Asa matter of fat he got it turned up yesterday to that and today is having a extream amount of GTC's. I am not sure if they go together but i know that it does not work at all for my son.
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the docotrs did not even tell me any side effects tat it may have and i was so excited to get it for him to try to help him now i wish i never did becasue itcan not be taken out and other reasons.
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Hi i had my vns put in oct 2006 still have to go to London hospital to put it up until complete i come out coughing each time.Its cut my seizures from 1hr to 10mins so its doing the trick up to now i think its an operation worth having if your fits our bad love shirl
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We are considering this Vagus nerve stimulation (VNS) ASAP....any feedback? Love to all! Dawn
In one month I am probably having Vagus Nerve Stimulation Surgery done and am getting scared to death, is their anyone …
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