Epilepsy & Seizures Support Group

huge hugs. I understand entirely and know the feeling when it comes to family but over time they have come to accept it. If you want to become friends so we can email and try discuss how you feel and I can share how I tried to cope with the situation then I would be happy to support. After all, I've been there too and to a certain degree still there. Huge hugs again. lemming

PS I have friended you but there's no pressure to accept!

Hello jenlbd,

There has been a lot of little things I have been through and my family has always understood. But when it came to me being diagnosed with Epi. early April 2008, it has been very hard for my family to understand.

The only thing that is hard for them to understand is my fears. When I say that I do not feel comfortable going to gathering with a bunch of people, they will tell me what are you worried about you will be fine. And the thing is I'm sure everything will be fine. I just have fears that I have to get through that someone without Epi. will understand.

This has happened to each one of us. This is a scary and misunderstood diagnosis. You need to tell them that you are as confused an scared as they are. That you want to run away and stick your head in the sand too. Tell them that you know that they don't understand--that you want to help them understand--that you NEED them to understand because you need them. Make sure they know you are not angry at them for feeling the way they feel but that you feel the same way. This will make a huge difference.