An allergy can refer to several kinds of immune reactions including Type I hypersensitivity in which a person's body is hypersensitised and develops IgE type antibodies to typical ...
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Multiple Issues = Consider this...
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Same here, different day...
Have multiple issues... I have a fabulous Doc up here, I would if I were you... go to a neurologist that specializes in Autonomic issues, he has identified my issues as "autonomic failures" Most General Practic Dr's send you from one specialist to another and it's not until they have exhausted all other options or something major happens that you're sent to the doc you should have been sent to all along. It won't always happen all at once, if it's not one thing it's another... is how I sometimes feel. Allergies is HUGE and one of the first things you'll notice... Flu like and digestive issues as a child you're on antibiotics for everything Bladder, eye and / or ear infections that re-occur environmental and being super sensitive is a HUGE issue blood pressure up and down (typically doesn't happen unless you're in the advance stages) PAIN, exhaustion catching colds super easy asthma eyes that are drying up and don't tear anymore temperature control sleeping too much or not sleeping at all migraines vision changes heart can skip a beat or you may have a murmur stress kicks it into higher gear but typically there is no rhyme or reason for it Your body isn't giving you the right messages Ok, those are a few... Autonomic issues... all the things that your body is SUPPOSE to do automatically isn't doing them anymore... when your body is suppose to fight off things and it doesn't happen. Your brain is giving a "mixed message" to the automatic functions you're suppose to do automatically. I feel like I've been in a bubble for years! The key is to go to a neurologist that specializes in AUTONOMIC failure. Someone's elses response So I'm a bit confused? What sort of disorder is this....something with the autonomic nervous system? Does it have a name? A treatment? 11:06 pm My response back... Autonomic failure is the umbrella name, in my records it says "autonomic failure" but under this I believe it does have many subtitles. Some if you're lucky enough to "get a specific title name" others you may have the general umbrella "autonomic failure" name... It's kinda like MS before MS had a name. That's why you have to go to a neurologist that specializes in it... otherwise another one may blow you off. A Dr that specializes in this will recognize it your issues as one diagnosis. There are MANY people like me he says... it's the matter of "finding them all" because a GP doc will send you to the specialist that specializes in whatever problem you're having at the moment and what happens to be "flared up" but not be looking at the overall issues as one diagnoses. yes it effects the nervous system, I also have nerve damage (feet, legs and hands) Autonomic nervous system, autonomic dysautonomia, which is all the same as Autonomic failure (umbrella name). If you do a google search for AUTONOMIC FAILURE you'll find many articles... very simular issues to what everybody is talking about here. It's ALL the automatic functions your body is suppose to do "automatically" without you telling it to do it and doesn't do anymore. Something I didnt' mention above in the other message is... you can't sleep or you sleep all the time, your body doesn't know when to sleep, wake up or feel rested... you can only do what your body says you can do... and not to push it, if you do you'll pay for it in the end. Another sign is that your body doesn't know when it's cold / hot and it doesn't regulate itself normally... when it's a change in temperature from hot to cold, it's a "delayed reaction" or takes you longer to "adjust". Another is being super sensitive to meds because you may or may not always absorb your meds consistently. My doc says, my job is to undo everything that my patients like you have heard in the past, with all these diagnoses that they think they have, and tell them that it's "autonomic issues / failure" MANY are diagnosed wrong because we've been bounced from one specialist to another... He knew exactly what I had, the instant he seen my history and charts. There are not tests for everything... he has tested and confirmed a few things, but because there is so many unknowns, neurology depts can only test and confirm so much, other things they say is based on "alike simular cases". They do know that one of the chromosones we have are defective in patients like us. He has 100 patients like myself and there are thousands out there... he says "we all sound alike" and are identical in issues. The treatments are only to "control" your pain, nerve damage, blood pressure, migraines, allergies, feeling dizzy, dry eyes, or whatever happens to be "going on or you're having issues with... They have no cure for it, they can only treat your symptoms. It's super important for you to go to someone that specializes in this... it may take several phone calls but do it for you. In a way it was a relief for me... I finally have an explaination. What's confusing is that it doesn't always happen at a single moment... if it's not one thing its another... it's the overall umbrella of issues. Posted on 08/25/07, 10:08 am |
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Different search words you can type into google:
Autonomic dysautonomia Autonomic dysfunction Autonomic failure Autonomic disorders Autonomic Neuropathy - if you have nerve damage. Multiple System Atrophy Pure Autonomic failure Dysautonomia Foundation website is: http://www.ndrf.org/ 
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okay...I'm almost in tears here I'm so relieved. You see, there's so many things, I also forgot...there's these pains I get in my head, so intense I think I'm having a stroke or ruptured aneurysm but since I don't have any other symptoms, clearly I'm not, but they aren't my usual migraines, so I've just tried to ignore them because docs think I'm insane, and so does my husband. Because of my OCD, people tend to think "hypochondriac" so I intentionally try to minimize things, but I am so relieved to hear that this is not psychological, hypochondriachal because I KNOW it isn't, I know all this stuff HAS to have been something. Thank you, thank you, thank you, for saying I'm not crazy. Okay, well, I am a little...lol...but not because of this. Now, what the heck do I do about it? I will go search the chronic pain page for your post. And who is the doctor that you see? What is the treatment you get? What should I tell my GP so he doesn't look at me like I'm from Mars?
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The Dysautonomia Foundation www.ndrf.org explains it but is on the 'technical' side... but have found it to be helpful.
I'm wondering if you can call them for a referral.. I happen to be going to the "teaching" hospital in this region and is one of the best neurology centers in the country. I'd ask for a neurology referral, then call around and find someone that specifically specializes in autonomic failure. They can only treat the symptoms since they don't have a "cure". It's trying to "control" all of the issues and have someone on your side monitoring it closely. Things can go from good to super oh my, how am I going to live through this! But at least if you have someone following you, they can guide you and other medical teams on what to do. It took me many Emergency room visits this past year to figure out that this is going to be "normal" for me going forward. For instance, in my medical charts... high sensitivites for meds, they know to watch me... It also states that if and when I'm put under (for surgical procedures) that I could have... this and that happen, then other docs have a clue that this is "normal" for what the other related issues I have (that they may not be familier with because it's not their specialty) then they put you into a higher risk category so that they watch you more closely or don't freak out if the monitors go crazy for a second or two. Same goes for asthma and having a cold at the same time... I've been hospitalized three times for up to 5 days, because I instantly go into a tailspin when I get a cold and asthma attack at the same time. SO to answer your question... My first stop would be if you have a teaching hospital nearby, second would be to make calls and ask if they "specialize" in autonomic failure, third... just ask your GP for a neurology referral... but do your homework first, so you know where you want to be referred to. If you have headaches and migraines, he should refer you to a neurologist anyway, the GP doesn't have to know you're asking for someone specific. The best thing you can do for you and them, which I have done and didn't even know I was so helpful to them at the time... Document your events, your issues, every day, every week, everytime something goofy happens. This helps the team TREMENDOUSLY, especially if they have a clue of what's going on more than just "this weeks events" of the week that you happen to be visiting for the appointment. Good luck, let me know what happens
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Thank you. This is so helpful. As is the reading. I also in reading realized I forgot to add in my symptoms of hypoglycemia and urinary retention. See all these little things that are part of it that I've just lived with and ignored that disrupt my life but I just figured I was making something out of nothing. Bless you!
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Based on some of my reading, here's a list of my symptoms. Oh I just realized, my copy and paste method isn't working right....oh well...most of these are either a 3, 4 or 5 in scoring and i wrote details after the symptoms.
Autonomic Nervous System Symptoms for possible Autonomic Dysfunction/PAF Use the scale below to complete the list regarding your symptoms and their frequency: 1: Never 2 :< 1 time/month 3: 2-4 times/ month 4: 5-7 times/month 5: daily ______________________________________________________________________ 1 2 3 4 5 initiating urination and frequency– up at night to urinate at least 3 times 1 2 3 4 5 constipation 1 2 3 4 5 fatigue and weakness 1 2 3 4 5 nausea 1 2 3 4 5 headache – decrease in migraines r/t Topamax & in sinus headaches r/t Sinulair/Astelin 1 2 3 4 5 heartburn 1 2 3 4 5 clamminess of skin 1 2 3 4 5 tremulousness – possible side effect of Wellbutrin & Luvox? 1 2 3 4 5 sensation of rapid heartbeat – when checked pulse is normal 1 2 3 4 5 impaired memory – short term memory & confusion at times, impaired decision-making 1 2 3 4 5 fainting – If I feel like that, I sit down, drink water and rest til it passes 1 2 3 4 5 itching of the feet/hands 1 2 3 4 5 chest discomfort – angina like pain but I have no heart disease or angina 1 2 3 4 5 sensation of forceful, slow heartbeat 1 2 3 4 5 dizziness/vertigo/feeling off center (had 2 episodes of labyrinthitis in past 6 yrs) 1 2 3 4 5 frequent wakening during the night 1 2 3 4 5 shortness of breath – in hot weather 1 2 3 4 5 blurring or dimming of vision - blurry 1 2 3 4 5 excessive daytime sleepiness 1 2 3 4 5 loose, watery stools 1 2 3 4 5 anxiety 1 2 3 4 5 muscle aches 1 2 3 4 5 bloating after meals 1 2 3 4 5 lightheadedness (faintness) 1 2 3 4 5 difficulty falling to sleep, staying asleep 1 2 3 4 5 sensation of head or room spinning 1 2 3 4 5 excessive sweating – even when I lived in Canada in winter 1 2 3 4 5 confusion 1 2 3 4 5 neck or shoulder aching – due to herniated disks in cervical & thoracic spine 1 2 3 4 5 joint aches – Most recent symptom, really bad in elbows and knees Other symptoms that may relate: Hypoglycemia, Chronic ear fullness, tinnitus, impaired hearing when background noise is loud, feeling of imbalance, bumping into things, acute sharp head pains, fatigue whether I sleep 6 hrs, 8 hrs or 12 hrs, complete lack of motivation not due to depression, cold feet, numbness and tingling in right arm and hands.. Current Conditions & Treatments: Environmental Allergies: Singulair, &Astelin daily, avoiding irritants Migraines: Topamax daily, Midrin as needed, ice pack, sleep Obsessive-Compulsive Disorder: Luvox daily, Xanax as needed, cognitive-behavioral strategies Major Depression: Wellbutrin SR daily, balance of sleep/rest/activity, proper nutrition.
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Some helpful links...
Google search key word link I got up to page 10 - randomly selecting links http://www.google.com/search?q=Aut... http://www.pharmacology2000.com/Au... http://www.ndrf.org/PDF%20Files/di... http://www.greenhosp.org/medicalse... http://www.cnn.com/HEALTH/library/... http://nord-rdb.com/search/orgdeta... http://www.dinet.org/ANSlinks.htm This is a GREAT SITE of LINKS it looks like a ONE STOP shop page of links, I haven't reviewed it yet but it looks like it's going to be a great site to research. They also have a physician list http://www.steadyhealth.com/articl... http://www.healthline.com/adamcont... http://www.healthline.com/adamcont...
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I just wanted to thank u SO much for this information! I'm going to take it to my doctor. Is slow healing from bruising and sores also a symptom?
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I'm not sure... I'd ask your physican for a referral to a neurologist. Some General Practice docs get their nose out of shape if the patient is trying to self diagnose. I've heard horror stories about this, so be careful how much you share. I'd be asking for the referral first, then sharing all the details with the specialist.
Do your homework first and figure out who you want to be referred to... someone that specializes in Autonomic Issues is who you're looking for. At one of the links below you there is a list of referring doctors, I just found these links.. it happens to be that my doc is on there, and know he's very good at what he does. The best thing you can do for ANY and ALL Dr's, is give them a journal of sorts... even if it's a few times a week, document your issues so you're not just randomly telling them what the problem is recently. Also bringing your charts or better yet, a "summary" of all your past visits full history in outline form.
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I'll further clarify your question about slow healing from bruising... I'm not sure because I've taken blood thinners (don't anymore) and have bruised easily in the past anyway.
Being sore as in??? I'm tender and sensitive a lot of things... my reactions to things is in his words "about ten times more than a typical person..." I instantly agreed, it's in general the reaction to things... sensitivities to meds, to things in general, how your body responds to cold, to warm, to... When they do tests sometimes it comes back normal other times it doesn't, (mis diagnoses is most common) they treat it and not always do meds work, sometimes if you're lucky they will, most times it doesn't and other times you'll get such a reaction it's like you only need to take a child dose half tablet. It depends on the moment if your body is going to actually absorb the med.. other times the meds won't work because it's autonomic and not actually for instance a bladder infection... if thats what happens to be going wrong that day / week month. This is only one example of many many... I could write a book and go on forever about what I've learned in the past year... how it all makes sense now... I hope the best for you.. keep in touch, let us know what happens.
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