Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...
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lost and alone
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Does anyone ever feel completely alone? I mean the day to day pain and the effort it takes to be upbeat, excited about things, and keep the extent of the pain hidden from the kids (they don't need to know). I sometimes wish others would say, hey, sit down for a while, take a load off. Of course the pain makes you do sit down, but others only comment on why you sleep more lately, why can't you get everything done in a day and why can't you carry this or that. Wow, your strength has really diminished this year. I mean my husband knows of my problems, but it seems that after many years of this I would not have to explain it over and over and over to him. I mean where is the common sense? Gee, she is having a hard time carrying the laundry, it must be the fibroid or the endo, but that is never the first thing to enter his mind. It is always, why can't you do that? If I have to say it to my husband one more time I think I will scream! I wish he could look at me and say, wow, look at all she gets done in a day and still manages to smile, laugh and take care of the kids even though she is in constant pain. Just wondered if anyone else has these types of feelings.
Bye Posted on 08/01/08, 04:08 pm |
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oh yea, i know exactly what you mean! the endo has been super hard on me and my life and my relationships. both physically and emotionally. its so hard to get everything done that needs to get done. just know that your not alone. i wish i had more hope and advice to give but im here if you ever need to vent or just want to chat
*Hugs* 
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OH YES!!!! I know exactly what you are talking about!! I have friends ignore emails and me just because they didn't know what to say to me. I do have an incredible boss (I am a nanny) who on occation will say to me that she doesn't know how I can cope with the amount of pain I am in....how I get all her housework done and take such good care of her kids. Frankly I don't know how i do it most days! But it is really nice that she says that once in awhile. I feel like at least she is taking notice!
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Having kids with endo means you are basically superwoman! I can barely function when it is bad, like right now, and have lost the ability to work, socialize, clean my house, have fun etc. etc. It is so isolating and I feel really alone a lot , but having you guys helps. Hang in there and remember, you are one strong gal!!!
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I hear you hun. I'm so sorry. My heart goes out to you. I have other health prob. as well and am sep. from my hubby. I have so much stress,etc. but that's another post. I just wanted to say you're in my thoughts. I do understand and I do care. You're not alone. Hang in there,k. ~hugs~
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my hubby doesnt ever ask how iam! He expects me to do everything a normal person does. Iam looking at a new job thats only 6 hrs a day and he didnt get mad, amazing. He wanted me to ride on the harley 2 wks after major pelvic surgery. I dont even tell people about my cond anymore, cause they think i look fine, it get old and painmeds have such a bad rap, people think your a druggie.
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Thanks everyone! It is nice to know my feelings are not "all in my head" too. What a horrible thing this condition called endo really is.
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I absolutely empathise with you hun.
*hugs*
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Sending you hugs and letting you know you can count me in too!I feel like you do ALOT. Your post really helped me feel less alone today. THANK YOU!
Hang in there and know you are an amazing woman!
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I think we all can relate. I always hear that I have to "think positive" and that is true, but there are some days when it's just hard. Living with chronic pain is hard and its also very hard for people to understand or relate to, which unfortunately makes us feel lonley at times. Hope you can find comfort in knowing you are not alone.
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I know how you feel. My husbands side thinks I'm making it all up. That's o.k. he knows I'm not and thats all that counts. You can always come here and talk to any of us any time. =-}
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