What is Endometriosis

Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...

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Giving Up
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Friday and today my family doctor and rheumatologist told me "you are not going to get better and we can't help you with endometriosis". Although I have been referred to a good gyn dr., it will take at least 3 months to get any help from him. I have now been in horrible pain (with bowel and joint symptoms from the endo) for 2 year.
I just want to give up. When they said to me 'you will never get better' and I imagined my whole life of this pain, I wanted to just sit and cry. I don't have kids yet and if they can't resolve some of my joint pain and make me able to eat properly again, how could I EVER be a mom? I can't lift a child, I can't eat properly to carry one, I need 12 hours sleep a night.....HOW could I 'live with this' if I had to to any more than I am now (which is sitting and watching movies all day, in between trying to clean which is hard).
Because I am in Canada, no one researches or understands endo really, other than gyn drs, who barely know anything. They did a surgery on me 2 years ago and left the endo all over my bowels, ureter and bladder, so unless someone removes it from there, it will only worsen.
My entire life has been ruined by endo and I just feel like no one will ever help me or treat me. I feel like giving up.
Posted on 05/05/08, 01:05 pm
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Reply #1 - 05/05/08  3:53pm
" YOU NEED TO KEEP ON AND ON AT YOUR DOCTORS. PLEASE PLEASE DONT GIVE UP. I FEEL LIKE THIS EVERY MONTH BUT NOW READING WHAT YOU ARE GOING THROUGH MY SYMPTONS ARE FAR LESS. PLEASE DONT GIVE UP x My thoughts and prayers are with you. Please if you need someone to talk to please send me a message, although I dont access this site daily I will reply. God bless x "
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Reply #2 - 05/05/08  4:01pm
" My goodness honey. there isnt anybody in canada. is there any way you could come here. you really need a specialist. i will b praying for you. bc there is hope "
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Reply #3 - 05/05/08  4:45pm
" Oh my, i feel like i am listening to myself 4 years ago. I am 32 and i almost gave up. DON'T GIVE UP!!! I saw so many doctors that i lost count. I was alone, divorced and did not know what to anymore because all they wanted to do was rip my organs (ie hysterectomy) out of me. I was dead set against it. I am TOO YOUNG AND SO ARE YOU TO LET THIS DISEASE DO THIS TO YOU>. TRUST ME there are doctors out there. Maybe not in Canada, but maybe like sweetpea said you can come here. Once they did the embollization it fixed things. But i had 3 surgeries and then some. IT WAS AWFUL I HAD GIVEN UP. PLEASE DONT DO THAT. I KNOW HOW YOU FEEL. You can and WILL get through this. THere are ways, I promise. Please email me if you want to talk. My thoughts are with you. "
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