What is Endometriosis

Endometriosis is a common medical condition where the tissue lining the uterus (the endometrium, from endo, "inside", and metra, "womb") is found outside of the uterus, typically a...

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scared and i hurt so much
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i dont know what to do anymore well first off my name is Meagan I am 22 years old. My periods started being all out of whack after my appendectomy in June 07. I was having 6 periods a month. all very heavy. so i switched birth control pills well those made me very sick so my ex- dr said i should have an IUD placed. well 2 days later i was running a very high temp and was in so much pain. i had it removed. about a week later i was in the hospital again for pelvic inflammitory disease. my pain from any of this has never gone away. its been 3 months now since the IUD alreadt my hubby and i are at odds, my family thinks im faking since my laprascopy looked great. they didnt see anything. but he said it could be small or somewhere they didnt look. Im debating whether or not to call him tomorrow. my hubby and i tried to have intercourse and lately the pain has gotten better but when we tried it was like the end of the world i was in just so much pain. it was like someone was stabbig me. I feel like I cannot keep doing this. Ive been to 4 drs. Im so scard to tell the dr who did my surgery that i am still having severe pain. I should also mention ive been on some pretty big narcotic pain meds for the past three months. have pretty much stopped taking them too. now for 3 weeks almost 4. Im just scared to tell him because everyone says it is in my head. My heart thinks otherwise. I know im not feeling right. my periods have never been so heavy or painful. sex has never hurt before this much. i get tired doing the simplest of things and i am constantly in pain. lately it has been more of a sore feeling crampy kinda but since the "incident" this morning I hurt very badly like something is ripping through me. it is in my back and hips and pelvic area. i have a bump which is raised and bruised between my pelvis and hip kinda in the middle there i know its not a gland or lymph node but it hurts a lot and the pain just radiates. When it hurts like that I get light headed and dizzy. I dont know if anyone else has had this.. I dont want to tell my hubby or show him either. he gets so mad at me this morning he got me a tylonol sighed and said i thought we were over this honey. Im just so depressed by all of this. I dont know what to do. has anyone ever been through this? My hubby is a medic so he worries about me period but this is really tearing us apart.

meagan
Posted on 03/25/08, 05:03 am
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Reply #1 - 03/25/08  9:09am
" Do not ever hide your pain - especially from your doctor! First of all, it is NOT in your head! Second of all, this pain is REAL. Have you considered getting a second opinion? I am so sorry for your pain. You came to the right place for help - we all understand how you are feeling. If you can't get the proper support from your husband, you will definitely find it here. Best of luck to you. "
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Reply #2 - 03/25/08  10:03am
" I know it's hard to tell your dr everything without sounding like your crazy but I finally just broke down and cryed like baby in the exam room b/c I finally found a dr that listen to me he was very understanding and didn't think I was nuts,but listened to me and helped me.As far as your Dh I know it's hard on men b/c they are taught not to show emotion and it's probally scary for him and he feels helpless I know thats how it was for me "
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Reply #3 - 03/25/08  10:08am
" My dr. told me that they got the endo unless it was so small they couldn't see it.Hope your pain goes away. "
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Reply #4 - 03/25/08  12:43pm
" ((((((((((((((((((((megan))))))))) U r in my thoughts hun. "
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Reply #5 - 03/25/08  7:16pm
" I understand, they always tell endo sufferers you are insane, which is SO damaging to us. Pain is pain and it is hard to explain to others that most people don't 'pretend' to be in such severe pain they are on meds or have surgery. That would be insane and they are jerks for mentioning it.
The more I hear about IUDs the more wary I am of them. Perhaps discussing other methods besides birth control to deal with the pain might be important, although I don't know what.
Your husband is not being helpful, especially if you are truly in pain all the time. I would suggest to him to try having surgery and see how 'fun it is' ... "
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Reply #6 - 03/26/08  5:05am
" thank you guys for your replys i just dont know how to deal with all this. hubby is awful mad at me tonight he came home and i wanted him to lay behind me because sometimes that helps but he wanted to just play his game. i know that is his release from work and all but i dont know. when they did my laprascopy i seen the pics but everything did look wonderful. I just dont know he is giving it until May and put me on progeteron only pills. I wish my hubby could understand how much this truly hurts. i think his mom has gotten it into his head that i want attention. all i do is cry in pain anymore. i think my period is coming back. ibprofin like the dr told me to take doesnt work. what do you guys use to cope? my laptop works as my heating pad but sometimes the pressure of it just makes it worse.

So far i have had 4 doctors. 5 er visits. the last er visit i was in such pain but they turned me away even though i was running a 101 temp and in a ton of pain. they told me this is no longer an emergency and i just wanted pain medication. i despise pain medication. i only weigh like 87 pounds so it makes me horribly ill to take them. "
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