Endometriosis Support Group

I had a lot of endo on the outside of my bowel - in fact my bowel was stuck to my pelvis, I had the opposite prob to you though and suffered with severe constipation and fluid retention, it was all removed 8 weeks ago by my Gynae and I dont have any bowel problems at the moment, it does sound like you are much worse than I was though - hope you get it sorted

My bowel was getting pinched closed by the endo.
It was near impossible to "go" and hurt like crazy. I would get pains that felt like someone stabbing me with a big knife from the front of my abdomen and coming straight out my bum.

I had my 4th lap and had the endo burned out, they cut two inches out of my bowel and sewed it back together.

After all the endo pain the surgery pain was really no big deal.

It did take a little longer to heal up then the labs where they just burned endo.... but it ws totally worth it.

Straight after that operation I went on depo provera. (I would not take depo lupron.)

the provera stopped my period aftr about 6 months and I didnt have a period for 4 years... thats when I came off of the depo to get cycle back to try to get prego

thats the short version

Can I ask you all how you first found out? I know its personal, but I suspect I have this problem and I am seeing my doctor tomorrow. I would just like to know more about this when I go in there.

I have Endo on the outside of my bowel which had stuck my bowel to other organs causing me some horrendous problems. In December I had surgery where the bowel was unstuck but I still had problems. I have been referred to a Gastro and when I said to him I was concerned the Endo was in my bowel he said it does not grow in the bowel. This mystifies me a little as I am sure it can, because before my surgery I asked if they could look in bowel to se and i was given a strong laxative to empty the bowels so she could check. Unfortunately because I suffer greatly from constipation the laxative did not work so she couldn't look inside so she only dealt with the outside. My Gynae also told me if it was in the bowel there is absolutely nothing they can do about it because of the risks of perforating the bowel and bleeding to death. So I have no idea why My Gastro specialist said it can't grow in the bowel. Fortunately I am having an Endoscopy to rule anything anything sinsiter goig on in my bowel and I might find out then. The pain caused by the Endo being on the outside of my bowel has been horrendous. If I open my bowels it causes me so much pain that I will roll around on the floor afterwards, I get terrible constipation and I am on so many laxatives of which none seem to help. The problem has gotten so bad that I now have to push my fingers up my ladies bits so I can get the feaces out. To top all this off I also have Endo in my bladder so I have major problems there too. I don't know if that i enough information for you but if you want to know anything else just email me.

yes i have severe endo and adhesions, my gynocologist said its really severe and everywhere, also one gyno said my rectum is stuck to my vagina like a JAM sandwish, nice.

I started having extreme problems with my bowel after surgery. I had a lot of pain when I ate, and there were times I couldn't even keep water down. It felt like a constant spasming, except when I ate or tried to take medication - then it was like someone ramming a knife into me.

I don't have endo on my bowel but my new doctor fears that I am have an adhesion from my surgery. My left ovary is in a weird position and I have sharp pain when I move, lift things etc. It literally feels like something is pulling.

What really helped me was the duel use of Tramadol for the pain (higher level narcotics, including Oxycodone and Vicadin are not recommended for bowel pain. They tend to make it worse - I found that out the hard way) and an anti-spasmodic for the bowel: Dicyclomine. It is used mostly for IBS, which they don't think I have, but it works well on spasming bowel pain.

I am going to see a gastro soon, and he is probably the one that will do surgery on me - so I am told. I really don't want another GYN inside of me - the last one butchered me and put me in this mess in the first place. I ended up very dehydrated before surgery because of a bowl prep, and fluids, which were ordered hours in advance, were not given to me because the nurses were to busy calling their union to complain. I'm not kidding *rolls eyes*.

I am hungry a lot, and when the pain is controled I eat like a horse but am not gaining weight. I've actually lost weight without trying.

They don't think I have an obstruction, but that the adhesion is causing stress while I'm trying to digest, which limits how much I get from food. Hence the always hungry feeling.

I would find a good GI specalist. There are new techniques for removing endo off other organs. It involves excising it, instead of just burning it off.

Do go to a doctor as soon as possilbe. The longer you are like this the weaker your immune system gets. 70% of your immune system is in your GI tract, and with undue stress, your ability to fight infections (or even heal from simple cuts and bruises) can be affected.

I hope you feel better soon and that you find the help you need.

Endo attached my bowel to my uterus. I still have gastro probs and bladder probs. I also had my utersacral ligament removed because of the intense low back pain, it helped for about 8 months. I get back pain but it is not as intense as before.

Dublin,

Geez, that sounds like me. I've had severe constipation since- 4/2006--2 months after my gallbladder was taken out. Gastro says Colonoscopy and gastric endoscopy are clean, and my former and current OBGYNs suspect Endo. Grr! I need to get back on ins. cuz the pain sucks, and I want to know what is going on!

I have quite a bit ther too, can cause trouble when I'm not being treated and the endo is growing.