Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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I'm new to this group.
I've always had Loose/Floating Joints, managed to dislocate a knee twice, and a thumb 3 times through out my life so far. I only recently got myself a Rheumatologist for other reasons. He happened to mention in passing that I had very loose/floating joints. Is this the right place for me to be for support? Posted on 05/29/08, 09:05 am |
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Hey EnJeru - Check www.ednf.org as well. I have Hypermobile Ehlers-Danlos Syndrome and all my joints float - I don't tend to dislocate fully, but I sublux with every movement. Best wishes to you, Mags from VA. 
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Rheumatologist should be able to diagnose all your symptoms if he/she cant get a second opinion. i am seeing a Rhumy on thursday - I am fed up of this unexplain joint pain I have!
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I think you are in the right place... A genetacist diagnosed me and my children but I've heard that a Rheumatologist often dianosis EDS. I'm a sublux gal myself and have only fully dislocated my shoulder and elbow. My daughter dislocated her elbow 9 times in one year. Do you have any other problems other than your joints? All my info is in my profile. Keep us up on what happens with you... lylajean
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