Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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shoulder support at night?
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I have classic/hypermobility EDS and right now mostly have problems with my very loose shoulders (though I've had tendon transplants in both knees). I find they hurt at night if not supported. This is complicated by the fact that I have sleep apnea when on my back. At this point, I sleep in the less affected side and hug a bunched up towel like a teddy bear. I have to say... there must be a less pathetic solution somewhere! Anyone have advice?
Posted on 05/25/08, 11:05 am |
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Hey sibyl, i dont know if i have any advice, but i will tell you that I too have the sleep apnea on my back, but due to the laxity of my body, i find it nearly impossible to fall a sleep on my side...my hip seems like it wants nothing more then to go out the other side and my shoulders are nearly touching unless i too bunch up my blankets and pillows and such...so i find the only way to get to sleep is on my back and then i naturally fall to the side cuz of the apnea. I bought a Memory Foam strap on knee pillow...but it is much to bulky and does not help. Without meds, i find it nearly impossible to sleep at all. When i get acupuncture and i am on the table i find the same problem with my shoulder, not sure how to fix it. Well sorry i could not help much, but at least you know you are not alone in the dreading of night fall. 
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Thanks, jjehle. Sounds like your nights are as bad as or worse than mine. I too am using meds to sleep but I don't like to. I am hoping this won't get worse but i have no idea. It just started affecting my sleep about six months ago. Yes, it helps to hear back from someone and know I'm not making this stuff up. Appts. 6/10 with orthopedist, x ray, echoc., pt, and pain person. Maybe someone will have an idea... If so, I'll pass it on. Thanks for responding.
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Prolotherapy helped my shoulders be tighter so they didn't dislocate when I turned on my side in my sleep. Also, I now have a Tempurpedic bed and stay on my back pretty much comfortably throughout the night.
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Thanks, YoMags. I sleep on a Tempurpedic too. Before trying prolotherapy (or surgery), I'm going to see whether PT will help to strengthen my shoulders--I'm seeing a group of specialists who know about EDS. What I'm hoping for is some practical solution (as in, cylindrical pillows? a wedge? a shoulder stabilizer? not sure) in the interim.
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